The Lived Experience of Parents Caring for Preterm Infants after Discharge from Hospital:A Systematic Review and Meta Synthesis of Qualitative Studies_Chinese Journal of Evidence-Based Medicine

Authors：

 CHENGLei ¹ , FENGSheng ² , LUChun-mei ³ ,  HUYan ¹

1. School of Nursing, Fudan University, Shanghai 200032, China;
2. Department of PICU, Shanghai Children's Medical Center Affiliated to Shanghai Jiaotong University School of Medicine, Shanghai 200032, China;
3. Department of Neonatology, Children's Hospital of Fudan University, Shanghai 201102, China;

Corresponding author：

HUYan, Email: huyan@fudan.edu.cn

Keywords：

Preterm infant; Discharge; Parent; Caring experience; Qualitative research; Systematic review; Meta synthesis

DOI：

10.7507/1672-2531.20150180

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Objective To systematically review the experience of parents caring for preterm infants after discharge from hospital. Methods We searched databases including The Cochrane Library, Joanna Briggs Institute Library, PubMed, EMbase, Scopus, ISI Web of Science, PsycINFO, CINAHL, CBM, CNKI and VIP from inception to May 2015, to collect qualitative studies in the experience of parents caring for preterm infants after discharge from hospital. The quality of included studies was evaluated according to JBI Critical Appraisal Tool for qualitative studies in Australia. The results were integrated by integrating methods. Results A total of nine studies were included. Thirty-one complete findings were grouped according to their similarities to form seven categories. These categories resulted in two synthesized findings:integration results 1:parents grow in the adaptation of their care giving roles for the preterm infants; integration results 2:they are eager and thankful for support, resource and information in this critical transition period. Conclusion Health care workers should pay attention to the important influence of premature infants discharged from hospital on their parents. In the adaption period of premature parents, health care workers should give necessary care knowledge skills to guide the parents, to assist them to compete the role of caregivers as soon as possible and promote the healthy growth of premature infants after discharge.

Citation： CHENGLei, FENGSheng, LUChun-mei, HUYan. The Lived Experience of Parents Caring for Preterm Infants after Discharge from Hospital:A Systematic Review and Meta Synthesis of Qualitative Studies. Chinese Journal of Evidence-Based Medicine, 2015, 15(9): 1090-1097. doi: 10.7507/1672-2531.20150180 Copy

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2.	Boykova M, Kenner C. Transition from hospital to home for parents of preterm infants. J Perinat Neonat Nur, 2012, 26 (1):81-87.
3.	Lopez GL, Anderson KH, Feutchinger J. Transition of premature infants from hospital to home life. Neonatal Netw, 2012, 31(4):207-214.
4.	Strathearn L, Gray PH, O'Callaghan MJ, et al. Childhood neglect and cognitive development in extremely low birth weight infants:a prospective study. Pediatrics, 2001, 1(108):142-151.
5.	Joanna Briggs Institute. Joanna Briggs Institute reviewers' manual. Available at:http://joannabriggs.org/assets/docs/sumari/ReviewersManual-2014.pdf.
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7.	Kavanaugh K, Mead L, Meier P, et al. Getting enough:Mothers' concerns about breastfeeding a preterm infant after discharge. J Obstet Gynecol Neonatal Nurs, 1995, 24(1):23-32.
8.	Sankey J, Brennan S. Living with difference:Caring for a premature baby at home. Collegian, 2001, 2(8):10-18.
9.	Reyna BA, Pickler RH, Thompson A. A descriptive study of mothers' experiences feeding their preterm infants after discharge. Adv Neonatal Care, 2006, 6(6):333-340.
10.	Flacking R, Ewald U, Starrin B. "I wanted to do a good job":Experiences of ‘becoming a mother’ and breastfeeding in mothers of very preterm infants after discharge from a neonatal unit. Soc Sci Med, 2007, 64(12):2405-2416.
11.	de Souza NL, Pinheiro-Fernandes AC, Clara-Costa IC, et al. Domestic maternal experience with preterm newborn children. Rev Salud Publica (Bogota), 2010, 12(3):356-367.
12.	Griffin JB, Pickler RH. Hospital-to-home transition of mothers of preterm infants. MCN Am J Matern Child Nurs, 2005, 36(4):252-257.
13.	周明芳, 藤本荣子, 晏玲, 等. 新生儿重症监护室出院早产儿母亲育儿生活体验的质性研究. 中华护理杂志, 2012, 47(8):680-682.
14.	Castillo Espitia E, Ocampo González MP. Retrieving the offspring and caring for it during the first night at home. Investigación y educación en enfermería, 2013, 31(3):354-363.
15.	Phillips-Pula L, Pickler R, Mcgrath JM, et al. Caring for a Preterm Infant at Home. J Perinat Neonatal Nurs, 2013, 27(4):335-344.
16.	孙皓, 时景璞. 循证医学中PICO模型的扩展及其在定性研究中的应用. 中国循证医学杂志, 2014, 14(5):505-508.
17.	Pearson A. Balancing the evidence:incorporating the synthesis of qualitative data into systematic reviews. JBI reports, 2004, 2(2):45-64.
18.	Lopez GL, Anderson KH, Feutchinger J. Transition of Premature Infants From Hospital to Home Life. Neonatal Netw, 2012, 31(4):207-214.
19.	盛玮青, 杨江兰, 徐红. 以家庭为中心的护理模式在早产儿出院指导中的应用. 护理研究, 2013, 4(27):867-869.
20.	Freed GL, Dunham KM, Lamarand KE, et al. Neonatal nurse practitioners:distribution, roles and scope of practice. Pediatrics, 2010, 5(126):856-860.
21.	Phillips RM, Goldstein M, Hougland K, et al. Multidisciplinary guidelines for the care of late preterm infants. J Perinatol, 2013, 33(S2):S5-S22.

1. Howson CP, Kinney MV, Lawn JE. Born Too Soon:the Report on Preterm Birth. Geneva:World Health Organization, 2012:26.
2. Boykova M, Kenner C. Transition from hospital to home for parents of preterm infants. J Perinat Neonat Nur, 2012, 26 (1):81-87.
3. Lopez GL, Anderson KH, Feutchinger J. Transition of premature infants from hospital to home life. Neonatal Netw, 2012, 31(4):207-214.
4. Strathearn L, Gray PH, O'Callaghan MJ, et al. Childhood neglect and cognitive development in extremely low birth weight infants:a prospective study. Pediatrics, 2001, 1(108):142-151.
5. Joanna Briggs Institute. Joanna Briggs Institute reviewers' manual. Available at:http://joannabriggs.org/assets/docs/sumari/ReviewersManual-2014.pdf.
6. 胡雁. 循证护理学. 北京:人民卫生出版社, 2012:130-141.
7. Kavanaugh K, Mead L, Meier P, et al. Getting enough:Mothers' concerns about breastfeeding a preterm infant after discharge. J Obstet Gynecol Neonatal Nurs, 1995, 24(1):23-32.
8. Sankey J, Brennan S. Living with difference:Caring for a premature baby at home. Collegian, 2001, 2(8):10-18.
9. Reyna BA, Pickler RH, Thompson A. A descriptive study of mothers' experiences feeding their preterm infants after discharge. Adv Neonatal Care, 2006, 6(6):333-340.
10. Flacking R, Ewald U, Starrin B. "I wanted to do a good job":Experiences of ‘becoming a mother’ and breastfeeding in mothers of very preterm infants after discharge from a neonatal unit. Soc Sci Med, 2007, 64(12):2405-2416.
11. de Souza NL, Pinheiro-Fernandes AC, Clara-Costa IC, et al. Domestic maternal experience with preterm newborn children. Rev Salud Publica (Bogota), 2010, 12(3):356-367.
12. Griffin JB, Pickler RH. Hospital-to-home transition of mothers of preterm infants. MCN Am J Matern Child Nurs, 2005, 36(4):252-257.
13. 周明芳, 藤本荣子, 晏玲, 等. 新生儿重症监护室出院早产儿母亲育儿生活体验的质性研究. 中华护理杂志, 2012, 47(8):680-682.
14. Castillo Espitia E, Ocampo González MP. Retrieving the offspring and caring for it during the first night at home. Investigación y educación en enfermería, 2013, 31(3):354-363.
15. Phillips-Pula L, Pickler R, Mcgrath JM, et al. Caring for a Preterm Infant at Home. J Perinat Neonatal Nurs, 2013, 27(4):335-344.
16. 孙皓, 时景璞. 循证医学中PICO模型的扩展及其在定性研究中的应用. 中国循证医学杂志, 2014, 14(5):505-508.
17. Pearson A. Balancing the evidence:incorporating the synthesis of qualitative data into systematic reviews. JBI reports, 2004, 2(2):45-64.
18. Lopez GL, Anderson KH, Feutchinger J. Transition of Premature Infants From Hospital to Home Life. Neonatal Netw, 2012, 31(4):207-214.
19. 盛玮青, 杨江兰, 徐红. 以家庭为中心的护理模式在早产儿出院指导中的应用. 护理研究, 2013, 4(27):867-869.
20. Freed GL, Dunham KM, Lamarand KE, et al. Neonatal nurse practitioners:distribution, roles and scope of practice. Pediatrics, 2010, 5(126):856-860.
21. Phillips RM, Goldstein M, Hougland K, et al. Multidisciplinary guidelines for the care of late preterm infants. J Perinatol, 2013, 33(S2):S5-S22.

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The Lived Experience of Parents Caring for Preterm Infants after Discharge from Hospital:A Systematic Review and Meta Synthesis of Qualitative Studies

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