Investigation of Self-management Status in Patients with Ankylosing Spondylitis_West China Medical Journal

Authors：

 DENGRong ¹ , LIANGYan ² , TANXiao-bo ² , WANGYing ²

1. Center of Infectious Diseases, West China Hospital, Sichuan University, Chengdu, Sichuan 610041, P. R. China;
2. Department of Rheumatology, West China Hospital, Sichuan University, Chengdu, Sichuan 610041, P. R. China;

Corresponding author：

Keywords：

Ankylosing spondylitis; Self-management; Investigation

DOI：

10.7507/1002-0179.20150039

Video：

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Objective To understand the self management status of patients with ankylosing spondylitis (AS). Methods Sixty inpatients and outpatients with AS in the Department of Rheumatology between December 2011 and December 2012 were selected as the study subjects by judgment sampling method. A self-made questionnaire was used for investigation. Results The self-management skills of 10.0% of the patients were poor, 78.3% were moderate and 11.7% were fine. The self-management skills of functional training and keeping healthy lifestyle were relatively poor. The factors with a score from the highest to the lowest were:the mental self-management, symptom management, keeping healthy lifestyle, and the self-management of functional training. Conclusions The self-management skills of patients with ankylosing spondylitis range from moderate to relatively poor. Our results suggest that cultural factors and the course of disease may be the main influence factors for self-management skills of patients. Clinical medical personnel should know the situation of patients sufficiently, improve the processes of health education and take corresponding intervention measures to the lack of self management ability. By the above ways, we can improve the compliance obedience and the self-management skills of patients, then the patients' condition and living quality will be greatly improved.

Citation： DENGRong, LIANGYan, TANXiao-bo, WANGYing. Investigation of Self-management Status in Patients with Ankylosing Spondylitis. West China Medical Journal, 2015, 30(1): 115-118. doi: 10.7507/1002-0179.20150039 Copy

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8.	梁玉民.糖尿病患者自我管理能力调查分析[J].现代预防医学, 2007, 34(8):1556-1557.
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10.	姚光喜, 吴清香, 陈小武.护理干预对强直性脊柱炎患者生活质量的影响[J].罕少疾病杂志, 2014, 21(2):21-23.
11.	盛长健, 刘健.强直性脊柱炎患者焦虑抑郁情绪变化及相关性分析[J].中医药临床杂志, 2010, 22(4):302-304.
12.	张利宏, 闫欣.心理干预对强直性脊柱炎住院患者生理和心理的影响[J].山西医科大学学报, 2009, 40(3):275-277.
13.	张爱萍, 赵彩虹, 王巧玲.心理干预对住院强性脊柱炎患者抑郁情绪的影响[J].临床医药实践, 2008, 17(12):988-989.
14.	周凤.强直性脊柱炎的功能锻炼[J].内蒙古中医药, 2012, 31(8):136-137.
15.	Falkenbach A. Disability motivates patients with ankylosing spondylitis for more frequent physical exercise[J]. Arch Phys Med Rehabil, 2003, 84(3):382-383.
16.	张楠, 阎小萍, 陶庆文, 等.综合强化疗法治疗强直性脊柱炎40例临床观察[J].中国中西医结合杂志, 2011, 31(4):558-559.
17.	Gran JT, Skomsvoll JF. The outcome of ankylosing spondylitis:a study of 100 patients[J]. Br J Rheumatol, 1997, 36(7):766-771.

1. Barlow J, Wright C, Sheasby J, et al. Self-management approaches for People with chronic conditions:a review[J]. Patient Educ Couns, 2002, 48(2):177-187.
2. Holman H, Lorig K. Patient self-management:a key to effectiveness and efficiency in care of chronic disease[J]. Public Health Rep, 2004, 119(3):239-243.
3. Jerant AF, von Friederichs-Fitzwater MM, Moore M. Patients' perceivedbarriers to active self-management of chronic conditions[J]. Patient Educ Couns, 2005, 57(3):300-307.
4. Coleman MT, Newton KS. Supporting self-management in patients with chronic illness[J]. Am Fam Physician, 2005, 72(8):1503-1510.
5. Dongbo F, Ding Y, Mcgowan P, et al. Qualitative evaluation of Chronic Disease Self Management Program (CDSMP) in Shanghai[J]. Patient Educ Couns, 2006, 61(3):389-396.
6. Swerissen H, Belfrage J, Weeks A, et al. A randomised control trial of a self-management program for people with a chronic illness from Vietnamese, Chinese, Italian and Greek backgrounds[J]. Patient Educ Couns, 2006, 64(1/2/3):360-368.
7. 陈红, 梁燕, 王英.风湿免疫科护理手册[M].北京:科学出版社, 2011:105-116.
8. 梁玉民.糖尿病患者自我管理能力调查分析[J].现代预防医学, 2007, 34(8):1556-1557.
9. 田溢卿, 杨素勉, 刘月欣.强直性脊柱炎患者的心理护理[J].现代中西医结合杂志, 2009, 18(36):4568.
10. 姚光喜, 吴清香, 陈小武.护理干预对强直性脊柱炎患者生活质量的影响[J].罕少疾病杂志, 2014, 21(2):21-23.
11. 盛长健, 刘健.强直性脊柱炎患者焦虑抑郁情绪变化及相关性分析[J].中医药临床杂志, 2010, 22(4):302-304.
12. 张利宏, 闫欣.心理干预对强直性脊柱炎住院患者生理和心理的影响[J].山西医科大学学报, 2009, 40(3):275-277.
13. 张爱萍, 赵彩虹, 王巧玲.心理干预对住院强性脊柱炎患者抑郁情绪的影响[J].临床医药实践, 2008, 17(12):988-989.
14. 周凤.强直性脊柱炎的功能锻炼[J].内蒙古中医药, 2012, 31(8):136-137.
15. Falkenbach A. Disability motivates patients with ankylosing spondylitis for more frequent physical exercise[J]. Arch Phys Med Rehabil, 2003, 84(3):382-383.
16. 张楠, 阎小萍, 陶庆文, 等.综合强化疗法治疗强直性脊柱炎40例临床观察[J].中国中西医结合杂志, 2011, 31(4):558-559.
17. Gran JT, Skomsvoll JF. The outcome of ankylosing spondylitis:a study of 100 patients[J]. Br J Rheumatol, 1997, 36(7):766-771.

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