孤独症谱系障碍儿童的家庭负担及康复治疗研究进展_West China Medical Journal

Authors：

 杨涛 , 王垭 , 刘娟 , 杨丽 ,  黄雪花

四川大学华西医院心理卫生中心, 成都 610041;

Corresponding author：

杨涛, Email: 340383545@qq.com; 黄雪花, Email: huangxuehua10@163.com

Keywords：

孤独症谱系障碍; 疾病负担; 康复

DOI：

10.7507/1002-0179.201600310

Video：

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Abstract Full text Figures/Tables Video References Cited by

孤独症谱系障碍（ASD）是一类以社会交往障碍、交流障碍、兴趣狭窄和刻板重复的行为方式为特征的心理发育障碍性疾病。现从 3 个角度对 ASD 儿童家庭负担及康复治疗研究进展进行综述:以点来看， ASD 儿童对家庭有严重影响；以横切面看， ASD 儿童各阶段的康复需要多方的参与；以时间轴纵看， ASD 儿童的康复计划是随着成长动态变化的过程。期望以上内容能为相关领域未来的研究提供参考。

Citation： 杨涛, 王垭, 刘娟, 杨丽, 黄雪花. 孤独症谱系障碍儿童的家庭负担及康复治疗研究进展. West China Medical Journal, 2016, 31(6): 1147-1151. doi: 10.7507/1002-0179.201600310 Copy

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1. Garrido D, Carballo G, Franco V, et al. Language comprehension disorders in non-verbal children with autism spectrum disorders and their implications in the family quality of life[J]. Rev Neurol, 2015, 60(5) :207-214.
2. Bagatell N, Mason AE. Looking backward, thinking forward: occupational therapy and autism spectrum disorders[J]. OTJR (Thorofare N J), 2015, 35(1) :34-41.
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4. 赵冬梅, 杨良政, 张艳卿, 等. 培训-家庭康复训练模式治疗儿童孤独症疗效观察[J]. 中国康复医学杂志, 2014, 29(3) :260-262.
5. 李迎春. 关注孤独症患儿父母的心理问题提高患儿家庭生活质量[J]. 中国医药指南, 2013, 11(17) :365, 366.
6. 陈瑜, 张宁, 裴涛. 国外孤独症儿童家庭应激研究现状[J]. 中国特殊教育, 2007(10) :66-70.
7. 夏薇, 王佳, 孙礼, 等. 孤独症患儿家庭环境及父母生存质量分析[J]. 中国学校卫生, 2010, 31(2) :136-137, 140.
8. 段桂琴, 姚梅玲, 靳彦琴. 孤独症患儿家庭疾病负担和家长的应对方式[J]. 中国妇幼保健, 2013, 28(2) :278-280.
9. 陈瑜, 裴涛, 张宁. 孤独症患儿家庭应激状况调查[J]. 中国健康心理学杂志, 2011, 19(12) :1419-1421.
10. 吉彬彬, 易容芳, 孙玫, 等. 孤独症儿童照顾者健康相关生活质量与家庭功能的相关性[J]. 广东医学, 2012, 33(15) :2327-2329.
11. Smith LE, Seltzer MM, Greenberg JS. Daily health symptoms of mothers of adolescents and adults with fragile x syndrome and mothers of adolescents and adults with autism spectrum disorder[J]. J Autism Dev Disord, 2012, 42(9) :1836-1846.
12. Ruiz-Robledillo N, Moya-Albiol L. Lower electrodermal activity to acute stress in caregivers of people with autism spectrum disorder: an adaptive habituation to stress[J]. J Autism Dev Disord, 2015, 45(2) :576-588.
13. Foody C, James JE, Leader G. Parenting stress, salivary biomarkers, and ambulatory blood pressure:a comparison between mothers and fathers of children with autism spectrum disorders[J]. J Autism Dev Disord, 2015, 45(4) :1084-1095.
14. Parish SL, Thomas KC, Williams CS, et al. Autism and families' financial burden:the association with health insurance coverage[J]. Am J Intellect Dev Disabil, 2015, 120(2) :166-175.
15. 王佳, 于聪, 孙彩虹, 等. 孤独症患儿236名家庭疾病负担状况调查[J]. 中国学校卫生, 2010, 31(2) :138-140.
16. 王佳, 曹孟儒, 周雪, 等. 孤独症患儿就诊及家庭养护现状调查[J]. 中国儿童保健杂志, 2010, 18(10) :757-760.
17. Cidav Z, Marcus SC, Mandell DS. Implications of childhood autism for parental employment and earnings[J]. Pediatrics, 2012, 129(4) : 617-623.
18. 杨昱, 王曼. 学龄前孤独症儿童家庭的职业和经济负担调查[J]. 中国临床心理学杂志, 2014, 22(2) :295-297, 361.
19. Ou JJ, Shi LJ, Xun GL, et al. Employment and financial burden of families with preschool children diagnosed with autism spectrum disorders in urban China:results from a descriptive study[J]. BMC Psychiatry, 2015, 15(1) :3.
20. 熊妮娜, 杨丽, 于洋, 等. 孤独症、肢体残疾、智力残疾儿童家庭经济负担调查[J]. 中国康复理论与实践, 2010, 16(8) :785-788.
21. Hayes SA, Watson SL. The impact of parenting stress:a metaanalysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder[J]. J Autism Dev Disord, 2013, 43(3) :629-642.
22. Werner S, Shulman C. Does type of disability make a difference in affiliate stigma among family caregivers of individuals with autism, intellectual disability or physical disability?[J]. J Intellect Disabil Res, 2015, 59(3) :272-283.
23. Soltanifar A, Akbarzadeh F, Moharreri F, et al. Comparison of parental stress among mothers and fathers of children with autistic spectrum disorder in Iran[J]. Iran J Nurs Midwifery Res, 2015, 20(1) : 93-98.
24. Johnson N, Frenn M, Feetham S, et al. Autism spectrum disorder: parenting stress, family functioning and health-related quality of life[J]. Fam Syst Health, 2011, 29(3) :232-252.
25. Khanna R, Madhavan SS, Smith MJ, et al. Assessment of healthrelated quality of life among primary caregivers of children with autism spectrum disorders[J]. J Autism Dev Disord, 2011, 41(9) : 1214-1227.
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