<trans-title xml:lang="en"/>_West China Medical Journal

Authors：

朱盈盈 ,  刘丹

四川大学华西医院呼吸与危重症医学科（成都 610041）;

Corresponding author：

刘丹, Email: edifier0617@gmail.com

Keywords：

慢性阻塞性肺疾病; 自我管理; 影响因素; 生活质量

DOI：

10.7507/1002-0179.201603024

Video：

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自我管理是指慢性疾病患者通过管理病症、生活方式及行为活动等减缓病程、提高生活质量的过程，其是慢性阻塞性肺疾病（慢阻肺）患者综合护理必不可少的组成部分。大量研究显示，慢阻肺患者的自我管理能力受多种因素影响，包括患者自身素质、社会环境及医疗条件等。了解这些自我管理影响因素是提高患者自我管理能力的前提。该文主要介绍慢阻肺自我管理及其影响因素的最新研究进展。

Citation： 朱盈盈, 刘丹. . West China Medical Journal, 2017, 32(3): 460-464. doi: 10.7507/1002-0179.201603024 Copy

1.	Decramer M, Sibille Y. European conference on chronic respiratory disease. Lancet, 2011, 377(9760): 104-106.
2.	殷鹏, 王黎君, 刘世炜, 等.1990年与2010年中国15岁以上人群慢性阻塞性肺疾病的疾病负担分析. 中华预防医学杂志, 2015, 49(4): 364-368.
3.	Fragoso E, André S, Boleotomé JP,et al. Understanding COPD: a vision on phenotypes, comorbidities and treatment approach. Revista Portuguesa De Pneumologia, 2016, 22(2): 101-111.
4.	Barlow J, Wright C, Sheasby J,et al. Self-management approaches for People with chronic conditions: a review. Patient Educ Couns, 2002, 48(2): 177-187.
5.	Effing TW, Bourbeau J, Vercoulen J,et al. Self-management programmes for COPD: moving forward. Chron Respir Dis, 2012, 9(1): 27-35.
6.	Maarten JF, Margreet S. Self-management in patients with COPD: theoretical context, content, outcomes, and integration into clinical care. Int J Chron Obstruct Pulmon Dis, 2014, 9: 907-917.
7.	Disler RT, Gallagher RD, Davidson PM. Factors influencing self-management in chronic obstructive pulmonary disease: an integrative review. Int J Nurs Stud, 2012, 49(2): 230-242.
8.	陆海晴, 程洁. 以患者为中心的群组管理模式在COPD患者中的应用. 齐鲁护理杂志, 2015, 21(15): 27-29.
9.	高赞美, 楼仙, 蒋亚芬. 自我管理健康教育联合呼吸功能训练对COPD患者健康行为及康复的影响[J]. 中国健康教育, 2016, 32(2): 165-168.
10.	Patel N, Jones P, Adamson V,et al. Chronic obstructive pulmonary disease patients’ experiences of an enhanced self-management model of care. Qual Health Res, 2016, 26(4): 568-577.
11.	Sunde S, Walstad RA, Bentsen SB,et al. The development of an integrated care model for patients with severe or very severe chronic obstructive pulmonary disease (COPD): the COPD-Home model. Scand J Caring Sci, 2014, 28(3): 469-477.
12.	Wadell K, Webb KA, Preston ME,et al. Impact of pulmonary rehabilitation on the major dimensions of dyspnea in COPD. COPD, 2013, 10(4): 425-435.
13.	Gysels MH, Higginson IJ. Self-management for breathlessness in COPD: the role of pulmonary rehabilitation. Chron Respir Dis, 2009, 6(3): 133-140.
14.	Simpson AC, Rocker GM. Advanced chronic obstructive pulmonary disease: rethinking models of care. QJM, 2008, 101(9): 697-704.
15.	Chen KH, Chen ML, Lee S,et al. Self-management behaviours for patients with chronic obstructive pulmonary disease: a qualitative study. J Adv Nurs, 2008, 64(6): 595-604.
16.	Rice K, Bourbeau J, Macdonald R,et al. Collaborative self-management and behavioral change. Clin Chest Med, 2014, 35(2): 337-351.
17.	Zwerink M, van der Palen J, van der Valk PA,et al. Relationship between daily physical activity and exercise capacity in patients with COPD. Respir Med, 2013, 107(2): 242-248.
18.	将4（2）转下一行.Gado OM, Basionyla IM, Shady IM,et al. Anxiety-depressive symptoms in patients with chronic obstructive pulmonary disease (COPD) and impact on outcome. J Depress Anxiety, 2015, 4(2): 181.
19.	Yohannes AM, Alexopoulos GS. Depression and anxiety in patients with COPD. Eur Respir Rev, 2014, 23(133): 345-349.
20.	Dowson CA, Kuijer RG, Mulder RT. Anxiety and self-management behaviour in chronic obstructive pulmonary disease: what has been learned?. Chron Respir Dis, 2004, 1(4): 213-220.
21.	Panagioti M, Scott C, Blakemore A,et al. Overview of the prevalence, impact, and management of depression and anxiety in chronic obstructive pulmonary disease. Int J Chron Obstruct Pulmon Dis, 2014, 2014(9): 1289-1306.
22.	Alberto J, Joyner B. Hope, optimism, and self-care among Better Breathers Support Group members with chronic obstructive pulmonary disease. Appl Nurs Res, 2008, 21(4): 212-217.
23.	Alison J, Jenkins S. Optimising function in COPD: physical activity and pulmonary rehabilitation. Med Today, 2013, 14(3): 34-40.
24.	Theander K, Arne M, Hasselgren M,et al. Effects of a self-management program for patients with COPD or chronic heart failure (CHF) on self-efficacy related to exercise and fatigue. The SAFS study. Eur Respir J, 2015, 46(Suppl 59): PA3862.
25.	Simpson E, Jones MC. An exploration of self-efficacy and self-management in COPD patients. Br J Nurs, 2013, 22(19): 1105-1109.
26.	Effing T, Monninkhof EM, van der Valk P,et al. Self-management education for patients with chronic obstructive pulmonary disease. Cochrane Database Syst Rev, 2007, 17(4): CD002990.
27.	Stoilkova A, Janssen DJ, Wouters EF. Educational programmes in COPD management interventions: a systematic review. Respir Med, 2013, 107(11): 1637-1650.
28.	Meis JJ, Bosma CB, Spruit MA,et al. A qualitative assessment of COPD patients’ experiences of pulmonary rehabilitation and guidance by healthcare professionals. Respir Med, 2014, 108(3): 500-510.
29.	Ueki J, Takizawa M, Sano E,et al. Development of the novel interactive application software of iPad for COPD self-management education. J Informat Sci, 2000, 26(4): 211-226.
30.	Farmer A, Toms C, Hardinge M,et al. Self-management support using an Internet-linked tablet computer (the EDGE platform)-based intervention in chronic obstructive pulmonary disease: protocol for the EDGE-COPD randomised controlled trial. BMJ Open, 2014, 4(1): e004437.
31.	Williams V, Price J, Hardinge M,et al. Using a Mobile health application to support self-management in COPD: a qualitative study. Br J Gen Pract, 2014, 64(624): e392-e400.
32.	McCabe C, Mccann M, Brady AM. Computer and Mobile technology interventions for self management in chronic obstructive pulmonary disease. Cochrane Database Syst Rev, 2014, 12(8): CD011425.
33.	Halding AG, Wahl A, Heggdal K. ‘Belonging’. ‘Patients’ experiences of social relationships during pulmonary rehabilitation. Disabil Rehabil, 2010, 32(15): 1272-1280.
34.	Philip LJ. Social isolation and the perceived importance of in-person care amongst rural older adults with chronic pain: a review and emerging research agenda. J Pain Manag, 2014, 7(1): 13.
35.	Dang-Tan T, Ismaila A, Zhang S,et al. Clinical, humanistic, and economic burden of chronic obstructive pulmonary disease (COPD) in Canada: a systematic review. BMC Res Notes, 2015, 8(1): 464.
36.	Fang X, Wang X, Bai C. COPD in China: the burden and importance of proper management. Chest, 2011, 139(4): 920-929.
37.	Dinicola G, Julian L, Gregorich SE,et al. The role of social support in anxiety for persons with COPD. J Psychosom Res, 2013, 74(2): 110-115.
38.	Barton C, Effing TW, Cafarella P. Social support and social networks in COPD: A scoping review. COPD, 2015, 12(6): 690-702.
39.	张彩虹, 何国平, 李继平, 等. 慢性阻塞性肺疾病患者自我管理现状及其影响因素研究. 中国全科医学, 2012, 15(10): 1120-1123.
40.	Sykes S, Wills J, Rowlands G,et al. Understanding critical health literacy: a concept analysis. BMC Public Health, 2013, 13(1): 150.
41.	Omachi TA, Sarkar U, Yelin EH,et al. Lower health literacy is associated with poorer health status and outcomes in chronic obstructive pulmonary disease. J Gen Intern Med, 2013, 28(1): 74-81.

1. Decramer M, Sibille Y. European conference on chronic respiratory disease. Lancet, 2011, 377(9760): 104-106.
2. 殷鹏, 王黎君, 刘世炜, 等.1990年与2010年中国15岁以上人群慢性阻塞性肺疾病的疾病负担分析. 中华预防医学杂志, 2015, 49(4): 364-368.
3. Fragoso E, André S, Boleotomé JP,et al. Understanding COPD: a vision on phenotypes, comorbidities and treatment approach. Revista Portuguesa De Pneumologia, 2016, 22(2): 101-111.
4. Barlow J, Wright C, Sheasby J,et al. Self-management approaches for People with chronic conditions: a review. Patient Educ Couns, 2002, 48(2): 177-187.
5. Effing TW, Bourbeau J, Vercoulen J,et al. Self-management programmes for COPD: moving forward. Chron Respir Dis, 2012, 9(1): 27-35.
6. Maarten JF, Margreet S. Self-management in patients with COPD: theoretical context, content, outcomes, and integration into clinical care. Int J Chron Obstruct Pulmon Dis, 2014, 9: 907-917.
7. Disler RT, Gallagher RD, Davidson PM. Factors influencing self-management in chronic obstructive pulmonary disease: an integrative review. Int J Nurs Stud, 2012, 49(2): 230-242.
8. 陆海晴, 程洁. 以患者为中心的群组管理模式在COPD患者中的应用. 齐鲁护理杂志, 2015, 21(15): 27-29.
9. 高赞美, 楼仙, 蒋亚芬. 自我管理健康教育联合呼吸功能训练对COPD患者健康行为及康复的影响[J]. 中国健康教育, 2016, 32(2): 165-168.
10. Patel N, Jones P, Adamson V,et al. Chronic obstructive pulmonary disease patients’ experiences of an enhanced self-management model of care. Qual Health Res, 2016, 26(4): 568-577.
11. Sunde S, Walstad RA, Bentsen SB,et al. The development of an integrated care model for patients with severe or very severe chronic obstructive pulmonary disease (COPD): the COPD-Home model. Scand J Caring Sci, 2014, 28(3): 469-477.
12. Wadell K, Webb KA, Preston ME,et al. Impact of pulmonary rehabilitation on the major dimensions of dyspnea in COPD. COPD, 2013, 10(4): 425-435.
13. Gysels MH, Higginson IJ. Self-management for breathlessness in COPD: the role of pulmonary rehabilitation. Chron Respir Dis, 2009, 6(3): 133-140.
14. Simpson AC, Rocker GM. Advanced chronic obstructive pulmonary disease: rethinking models of care. QJM, 2008, 101(9): 697-704.
15. Chen KH, Chen ML, Lee S,et al. Self-management behaviours for patients with chronic obstructive pulmonary disease: a qualitative study. J Adv Nurs, 2008, 64(6): 595-604.
16. Rice K, Bourbeau J, Macdonald R,et al. Collaborative self-management and behavioral change. Clin Chest Med, 2014, 35(2): 337-351.
17. Zwerink M, van der Palen J, van der Valk PA,et al. Relationship between daily physical activity and exercise capacity in patients with COPD. Respir Med, 2013, 107(2): 242-248.
18. 将4（2）转下一行.Gado OM, Basionyla IM, Shady IM,et al. Anxiety-depressive symptoms in patients with chronic obstructive pulmonary disease (COPD) and impact on outcome. J Depress Anxiety, 2015, 4(2): 181.
19. Yohannes AM, Alexopoulos GS. Depression and anxiety in patients with COPD. Eur Respir Rev, 2014, 23(133): 345-349.
20. Dowson CA, Kuijer RG, Mulder RT. Anxiety and self-management behaviour in chronic obstructive pulmonary disease: what has been learned?. Chron Respir Dis, 2004, 1(4): 213-220.
21. Panagioti M, Scott C, Blakemore A,et al. Overview of the prevalence, impact, and management of depression and anxiety in chronic obstructive pulmonary disease. Int J Chron Obstruct Pulmon Dis, 2014, 2014(9): 1289-1306.
22. Alberto J, Joyner B. Hope, optimism, and self-care among Better Breathers Support Group members with chronic obstructive pulmonary disease. Appl Nurs Res, 2008, 21(4): 212-217.
23. Alison J, Jenkins S. Optimising function in COPD: physical activity and pulmonary rehabilitation. Med Today, 2013, 14(3): 34-40.
24. Theander K, Arne M, Hasselgren M,et al. Effects of a self-management program for patients with COPD or chronic heart failure (CHF) on self-efficacy related to exercise and fatigue. The SAFS study. Eur Respir J, 2015, 46(Suppl 59): PA3862.
25. Simpson E, Jones MC. An exploration of self-efficacy and self-management in COPD patients. Br J Nurs, 2013, 22(19): 1105-1109.
26. Effing T, Monninkhof EM, van der Valk P,et al. Self-management education for patients with chronic obstructive pulmonary disease. Cochrane Database Syst Rev, 2007, 17(4): CD002990.
27. Stoilkova A, Janssen DJ, Wouters EF. Educational programmes in COPD management interventions: a systematic review. Respir Med, 2013, 107(11): 1637-1650.
28. Meis JJ, Bosma CB, Spruit MA,et al. A qualitative assessment of COPD patients’ experiences of pulmonary rehabilitation and guidance by healthcare professionals. Respir Med, 2014, 108(3): 500-510.
29. Ueki J, Takizawa M, Sano E,et al. Development of the novel interactive application software of iPad for COPD self-management education. J Informat Sci, 2000, 26(4): 211-226.
30. Farmer A, Toms C, Hardinge M,et al. Self-management support using an Internet-linked tablet computer (the EDGE platform)-based intervention in chronic obstructive pulmonary disease: protocol for the EDGE-COPD randomised controlled trial. BMJ Open, 2014, 4(1): e004437.
31. Williams V, Price J, Hardinge M,et al. Using a Mobile health application to support self-management in COPD: a qualitative study. Br J Gen Pract, 2014, 64(624): e392-e400.
32. McCabe C, Mccann M, Brady AM. Computer and Mobile technology interventions for self management in chronic obstructive pulmonary disease. Cochrane Database Syst Rev, 2014, 12(8): CD011425.
33. Halding AG, Wahl A, Heggdal K. ‘Belonging’. ‘Patients’ experiences of social relationships during pulmonary rehabilitation. Disabil Rehabil, 2010, 32(15): 1272-1280.
34. Philip LJ. Social isolation and the perceived importance of in-person care amongst rural older adults with chronic pain: a review and emerging research agenda. J Pain Manag, 2014, 7(1): 13.
35. Dang-Tan T, Ismaila A, Zhang S,et al. Clinical, humanistic, and economic burden of chronic obstructive pulmonary disease (COPD) in Canada: a systematic review. BMC Res Notes, 2015, 8(1): 464.
36. Fang X, Wang X, Bai C. COPD in China: the burden and importance of proper management. Chest, 2011, 139(4): 920-929.
37. Dinicola G, Julian L, Gregorich SE,et al. The role of social support in anxiety for persons with COPD. J Psychosom Res, 2013, 74(2): 110-115.
38. Barton C, Effing TW, Cafarella P. Social support and social networks in COPD: A scoping review. COPD, 2015, 12(6): 690-702.
39. 张彩虹, 何国平, 李继平, 等. 慢性阻塞性肺疾病患者自我管理现状及其影响因素研究. 中国全科医学, 2012, 15(10): 1120-1123.
40. Sykes S, Wills J, Rowlands G,et al. Understanding critical health literacy: a concept analysis. BMC Public Health, 2013, 13(1): 150.
41. Omachi TA, Sarkar U, Yelin EH,et al. Lower health literacy is associated with poorer health status and outcomes in chronic obstructive pulmonary disease. J Gen Intern Med, 2013, 28(1): 74-81.

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