Advances about Application of Patient Registry_Chinese Journal of Evidence-Based Medicine

Authors：

 YANGXing-yue ¹ , LIUJia ² , HELi-yun ² ,  LIUBao-yan ³

1. Beijing university of Chinese medicine, Beijng 100700, China;
2. Institute of Basic Research in Clinical Medicine, China Academy of Chinese Medical Sciences, Beijing 100700, China;
3. China Academy of Chinese Medical Sciences, Beijing 100700, China;

Corresponding author：

LIUBao-yan, Email: liuby@mail.cintcm.ac.cn

Keywords：

Patient registry; Definition; Development; Application; Challenges

DOI：

10.7507/1672-2531.20160222

Video：

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Abstract Full text Figures/Tables Video References Cited by

Through summarizing the definition, concept, and development of patient registry, and also retrieving ClinicalTrials.gov, we introduce its application areas, application range, disease, research number. Based on the application situation, we present the challenges faced now and future development of direction.

Citation： YANGXing-yue, LIUJia, HELi-yun, LIUBao-yan. Advances about Application of Patient Registry. Chinese Journal of Evidence-Based Medicine, 2016, 16(12): 1481-1484. doi: 10.7507/1672-2531.20160222 Copy

1.	Agency for Healthcare Research and Quality. Registries for evaluating patient outcomes:a user's guide. 2^nd, 2010.
2.	Brooke EM. The current and future use of registries in health information systems. World Health Organization, 1974.
3.	Charrow J, Andersson HC, Kaplan P, et al. The Gaucher registry:demographics and disease characteristics of 1698 patients with Gaucher disease. Arch Intern Med, 2000, 160(18):2835-2843.
4.	Tilson H, DoiPA, Covington DL, et al. The antiretrovirals in pregnancy registry:A fifteenth anniversary celebration. Obstet Gynecol Surv, 2007, 62(2):137-148.
5.	Gao R, Patel A, Gao W, et al. Prospective observational study of acute coronary syndromes in China:practice patterns and outcomes. Heart, 2008, 94(5):554-560.
6.	Jing ZC,Xu XQ, Han ZY, et al. Registry and survival study in Chinese patients with idiopathic and familial pulmonary arterial hypertension. Chest, 2007, 132(2):373-379.
7.	陈建国, 朱健, 张永辉, 等. 肝癌流行趋势的改变:基于启东40年癌症登记资料的分析. 中国肿瘤, 2014, 23(8):621-628.
8.	王艳鹏. 丹红注射液治疗脑梗死医院注册登记研究. 北京:北京中医药大学, 2014.
9.	侯思仪. 苦碟子注射液(碟脉灵)上市后临床安全性注册登记研究. 沈阳:辽宁中医药大学, 2014.
10.	刘保延. 国际针灸注册登记研究的思路与方法. 8^th World Conference on Acupuncture (WFAS), 悉尼. 2013:26-27.

1. Agency for Healthcare Research and Quality. Registries for evaluating patient outcomes:a user's guide. 2^nd, 2010.
2. Brooke EM. The current and future use of registries in health information systems. World Health Organization, 1974.
3. Charrow J, Andersson HC, Kaplan P, et al. The Gaucher registry:demographics and disease characteristics of 1698 patients with Gaucher disease. Arch Intern Med, 2000, 160(18):2835-2843.
4. Tilson H, DoiPA, Covington DL, et al. The antiretrovirals in pregnancy registry:A fifteenth anniversary celebration. Obstet Gynecol Surv, 2007, 62(2):137-148.
5. Gao R, Patel A, Gao W, et al. Prospective observational study of acute coronary syndromes in China:practice patterns and outcomes. Heart, 2008, 94(5):554-560.
6. Jing ZC,Xu XQ, Han ZY, et al. Registry and survival study in Chinese patients with idiopathic and familial pulmonary arterial hypertension. Chest, 2007, 132(2):373-379.
7. 陈建国, 朱健, 张永辉, 等. 肝癌流行趋势的改变:基于启东40年癌症登记资料的分析. 中国肿瘤, 2014, 23(8):621-628.
8. 王艳鹏. 丹红注射液治疗脑梗死医院注册登记研究. 北京:北京中医药大学, 2014.
9. 侯思仪. 苦碟子注射液(碟脉灵)上市后临床安全性注册登记研究. 沈阳:辽宁中医药大学, 2014.
10. 刘保延. 国际针灸注册登记研究的思路与方法. 8^th World Conference on Acupuncture (WFAS), 悉尼. 2013:26-27.

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