Research progress of health management model for epileptic patients in the application_Journal of Epilepsy

Authors：

ZHANG Zhihan ^1,2 , BEN Xinyu ¹ , LUAN Chao ^1,2 , LIU Jiaqi ^1,2 , ZOU Qin ³ ,  LI Qifu ¹

1. Department of Neurology, The First Affiliated Hospital of Hainan Medical University, Haikou 570102, China;
2. InternationaI SchooI of PubIic HeaIth and Whole HeaIth, Hainan Medical University, Haikou 571199, China;
3. Department of Medical Psychology, the First Affiliated Hospital of Hainan Medical University, Haikou 570102, China;

Corresponding author：

LI Qifu, Email: lee-chief@163.com

Keywords：

Epilepsy; Health management; Model

DOI：

10.7507/2096-0247.202307001

Video：

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Epilepsy is one of the chronic central nervous system diseases that can occur repeatedly for a long time. About 70 million people worldwide suffer from epilepsy. Two thirds of epileptic patients do not receive proper treatment because of inadequate health care services and social discrimination based on cultural beliefs. Effective health management mode can reduce the morbidity and mortality of patients and improve the quality of life of patients. This article divides management modes into five types: Hospital-based health management model, community-based health management model, family health management model, self-health management model and health management model based on network technology. By referring to relevant literature, the research status of epilepsy health management model at home and abroad was summarized, which provides reference for the health management and reasonable intervention of patients with epilepsy.

Citation： ZHANG Zhihan, BEN Xinyu, LUAN Chao, LIU Jiaqi, ZOU Qin, LI Qifu. Research progress of health management model for epileptic patients in the application. Journal of Epilepsy, 2023, 9(5): 417-422. doi: 10.7507/2096-0247.202307001 Copy

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2.	Camfield P , Camfield C, Pohlmann-Eden B. Transition from pediatric to adult epilepsy care: a difficult process marked by medical and social crisis. Epilepsy Curr, 2012, 12(Suppl 3): 13-21.
3.	Loscher W , Potschka H, Sisodiya S-M, et al. Drug resistance in epilepsy: clinical impact, potential mechanisms, and new innovative treatment options. Pharmacol Rev, 2020, 72(3): 606-638.
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5.	Global, regional, and national burden of neurological disorders, 1990-2016: a systematic analysis for the Global Burden of Disease Study 2016. Lancet Neurol, 2019, 18(5): 459-480.
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7.	Bajwah S , Oluyase AO, Yi D, et al. The effectiveness and cost-effectiveness of hospital-based specialist palliative care for adults with advanced illness and their caregivers. Cochrane Database Syst Rev, 2020, 9(9): CD12780.
8.	Cohen E , Jovcevska V, Kuo DZ, et al. Hospital-based comprehensive care programs for children with special health care needs: a systematic review. Arch Pediatr Adolesc Med, 2011, 165(6): 554-561.
9.	Fuller AT, Almojuela A, Kaddumukasa M-N, et al. Hospital-based epilepsy care in Uganda: a prospective study of three major public referral hospitals. Epilepsy Behav, 2021, 114(Pt B): 107301.
10.	Guo X, Gu X, Jiang J, et al. A hospital-community-family-based telehealth program for patients with chronic heart failure: single-arm, prospective feasibility study. JMIR Mhealth Uhealth, 2019, 7(12): e13229.
11.	雷宏慧. 医院-社区-家庭三元联动护理模式对癫痫患儿QOLCE 评分、疾病控制效果的影响. 医学理论与实践, 2021, 34(5): 883-885.
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1. I Leppik, Birnbaum A-K, Harms SL, et al. Epilepsy co-morbidities in nursing homes: Focus on Alzheimer's. Epilepsy & Behavior, 2010, 17(4): 583-584.
2. Camfield P , Camfield C, Pohlmann-Eden B. Transition from pediatric to adult epilepsy care: a difficult process marked by medical and social crisis. Epilepsy Curr, 2012, 12(Suppl 3): 13-21.
3. Loscher W , Potschka H, Sisodiya S-M, et al. Drug resistance in epilepsy: clinical impact, potential mechanisms, and new innovative treatment options. Pharmacol Rev, 2020, 72(3): 606-638.
4. Asadi-Pooya AA , Brigo F, Lattanzi S, et al. Complementary and alternative medicine in epilepsy: a global survey of physicians' opinions. Epilepsy Behav, 2021, 117107835.
5. Global, regional, and national burden of neurological disorders, 1990-2016: a systematic analysis for the Global Burden of Disease Study 2016. Lancet Neurol, 2019, 18(5): 459-480.
6. Singh G , Sander JW. The global burden of epilepsy report: Implications for low- and middle-income countries. Epilepsy Behav, 2020, 105: 106949.
7. Bajwah S , Oluyase AO, Yi D, et al. The effectiveness and cost-effectiveness of hospital-based specialist palliative care for adults with advanced illness and their caregivers. Cochrane Database Syst Rev, 2020, 9(9): CD12780.
8. Cohen E , Jovcevska V, Kuo DZ, et al. Hospital-based comprehensive care programs for children with special health care needs: a systematic review. Arch Pediatr Adolesc Med, 2011, 165(6): 554-561.
9. Fuller AT, Almojuela A, Kaddumukasa M-N, et al. Hospital-based epilepsy care in Uganda: a prospective study of three major public referral hospitals. Epilepsy Behav, 2021, 114(Pt B): 107301.
10. Guo X, Gu X, Jiang J, et al. A hospital-community-family-based telehealth program for patients with chronic heart failure: single-arm, prospective feasibility study. JMIR Mhealth Uhealth, 2019, 7(12): e13229.
11. 雷宏慧. 医院-社区-家庭三元联动护理模式对癫痫患儿QOLCE 评分、疾病控制效果的影响. 医学理论与实践, 2021, 34(5): 883-885.
12. 王彦利, 徐艳, 高丽, 等. 互联网模式下的学校-医院-家庭健康管理模式在学龄期癫痫患儿中的应用. 全科护理, 2023, 21(6): 859-862.
13. 许燕, 王磊, 蔡盈, 等. 医院-家庭-学校联合照护模式在癫痫患儿护理中的应用研究. 循证护理, 2022, 8(20): 2801-2804.
14. Doran E , Barron E, Healy L, et al. Improving access to epilepsy care for homeless patients in the Dublin Inner City: a collaborative quality improvement project joining hospital and community care. BMJ Open Qual, 2021, 10(2): e001367.
15. Akl C , Akik C, Ghattas H, et al. The cascade of care in managing hypertension in the Arab world: a systematic assessment of the evidence on awareness, treatment and control. BMC Public Health, 2020, 20(1): 835.
16. Gao Y , Tang X, Wen Y, et al. Effects of the hospital-community-family ternary linkage continuous nursing model on compliance, cognitive function, resilience, and quality of life for children with epilepsy: a retrospective study. Transl Pediatr, 2022, 11(2): 239-248.
17. Li WW, Li M, Guo XJ, et al. Application of a hospital-community-family trinity rehabilitation nursing model combined with motor imagery therapy in patients with cerebral infarction. World J Clin Cases, 2023, 11(3): 621-628.
18. Shi Z, Zhao Y, Jin L, et al. Application of hospital-community-family health education to family caregivers of nasal fed patients under the background of a regional medical association. Am J Transl Res, 2022, 14(12): 8751-8760.
19. Zhang W , Yang P, Wang H, et al. The effectiveness of a mHealth-based integrated hospital-community-home program for people with type 2 diabetes in transitional care: a protocol for a multicenter pragmatic randomized controlled trial. BMC Prim Care, 2022, 23(1): 196.
20. Yin X , Wu J, Zhou L, et al. The pattern of hospital-community-home (HCH) nursing in tracheostomy patients with severe traumatic brain injury: Is it feasible?Int J Clin Pract, 2021, 75(4): e13881.
21. Bhatia M , Adcock J-E, Mackillop L. The management of pregnant women with epilepsy: a multidisciplinary collaborative approach to care. Obstetrician & Gynaecologist, 2017, 19(4): 279-288.
22. Zheng Y , Ding X, Guo Y, et al. Multidisciplinary management improves anxiety, depression, medication adherence, and quality of life among patients with epilepsy in eastern China: a prospective study. Epilepsy Behav, 2019, 100(Pt A): 106400.
23. Li W, Hao N, Liu W, et al. The experience of the multidisciplinary team in epilepsy management from a resource-limited country. Epilepsia Open, 2019, 4(1): 85-91.
24. Fujimoto A , Ichikawa N, Sato K, et al. Inclusion of general physicians in the multidisciplinary treatment team for epilepsy may lead to an economic benefit. Epilepsy Behav, 2019, 95: 56-60.
25. 施建兵, 陈苏. 癲痫的社区控制. 中国初级卫生保健, 1993, 12(8): 42-43.
26. Wang W , Wu J, Dai X, et al. Campaña mundial contra la epilepsia: evaluación de un proyecto piloto en la China rural. Bulletin of the World Health Organization, 2008, 86(12): 964-969.
27. Dua T , Wright A, Short B, et al. WHO information kit on epilepsy: what you can do. World Health Organization, 2015.
28. Farid Boumédiène, Chhour Channara, Chivorakoun Phetvonsinh, et al. Community-based management of epilepsy in Southeast Asia: Two intervention strategies in Lao PDR and Cambodia. The Lancet Regional Health - Western Pacific, 2020, 4: 100042.
29. Morikawa M. Towards community-based integrated care: trends and issues in Japan's long-term care policy. Int J Integr Care, 2014, 14: e005.
30. Katchanov J , Birbeck GL. Epilepsy care guidelines for low- and middle- income countries: from WHO mental health GAP to national programs. BMC Med, 2012, 10: 107.
31. Keynejad RC, Dua T, Barbui C, et al. WHO Mental Health Gap Action Programme (mhGAP) Intervention Guide: a systematic review of evidence from low and middle-income countries. Evid Based Ment Health, 2018, 21(1): 30-34.
32. Fodjo-JN Siewe, Dekker MCJ, Idro R, et al. Comprehensive management of epilepsy in onchocerciasis-endemic areas: lessons learnt from community-based surveys. Infect Dis Poverty, 2019, 8(1): 11.
33. E van Diessen, van der Maas F, Cabral V, et al. Community-based rehabilitation offers cost-effective epilepsy treatment in rural Guinea-Bissau. Epilepsy Behav, 2018, 79: 23-25.
34. Bounlu M , Auditeau E, Vorachit S, et al. Explanatory factors of adherence to community-based management of epilepsy in Lao PDR. Epilepsy Behav, 2018, 88: 74-80.
35. Hutchinson K , Ryder T, Coleman H, et al. Determining the role and responsibilities of the community epilepsy nurse in the management of epilepsy. J Clin Nurs, 2022, 00: 1-16.
36. Dusabimana A , Mandro MN, Siewe Fodjo JN, et al. Community perceptions and attitudes regarding epilepsy and disease cost after implementation of a community-based epilepsy treatment program in onchocerciasis-endemic communities in the Democratic Republic of Congo. Epilepsy Behav, 2021, 116: 107773.
37. Jada SR , Tionga MS, Siewe Fodjo JN, et al. Community perception of epilepsy and its treatment in onchocerciasis-endemic villages of Maridi county, western equatoria state, South Sudan. Epilepsy Behav, 2022, 127: 108537.
38. Knafl KA, Deatrick JA, Gallo AM, et al. Tracing the use of the family management framework and measure: a scoping review. J Fam Nurs, 2021, 27(2): 87-106.
39. Liu H , Song Q, Zhu L, et al. Family management style improves family quality of life in children with epilepsy: a randomized controlled trial. J Neurosci Nurs, 2020, 52(2): 84-90.
40. Mendes TP, Crespo CA, Austin JK. The psychological costs of comparisons: Parents' social comparison moderates the links between family management of epilepsy and children's outcomes. Epilepsy Behav, 2017, 75: 42-49.
41. Shore CP, Buelow JM, Austin JK, et al. Continuing psychosocial care needs in children with new-onset epilepsy and their parents. J Neurosci Nurs, 2009, 41(5): 244-250.
42. Im Y , Cho Y, Kim D. Family management style as a mediator between parenting stress and quality of life of children with epilepsy. J Pediatr Nurs, 2019, 45: e73-e78.
43. Zhang LL , Jiang ZJ, Li YY, et al. Effectiveness of home care interventions in patients with moderate to severe craniocerebral injury combined with epilepsy. Comput Math Methods Med, 2022, 11: 3654181.
44. Rozensztrauch A, Koltuniuk A. The quality of life of children with epilepsy and the impact of the disease on the family functioning. Int J Environ Res Public Health, 2022, 19(4): 2277.
45. 李晓宇. 家庭管理模式在癫痫患儿延续护理中的应用研究. 青岛大学, 2021, 硕士学位论文.
46. Li C , Bi Q, Hu B, et al. Effect of self-management interventions for adults with epilepsy: a systematic review and meta-analysis. Ann Palliat Med, 2021, 10(12): 12086-12094.
47. Norris SL, Engelgau MM, Narayan KM. Effectiveness of self-management training in type 2 diabetes: a systematic review of randomized controlled trials. Diabetes Care, 2001, 24(3): 561-587.
48. 计星星, 薛培培, 吴佳. 自我效能干预对癫痫患儿生活质量的影响. 广东医科大学学报, 2020, 38(2): 245-247.
49. 冯建华. 综合护理干预对癫痫患者自我效能感及生活质量的影响. 河南医学研究, 2017, 26(23): 2.
50. 郭玉洁, 陈小利, 解紫晋, 等. 药物难治性癫痫患者迷走神经刺激术后自我管理模式的应用探讨. 癫痫与神经电生理学杂志, 2022, 31(6): 341-346.
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