Application of continuous nursing for school-age children with epilepsy based on timing theory_Journal of Epilepsy

Authors：

QIN Kaiqin ¹ ,  ZHU Lihong ² , ZHANG Linhui ³

1. Wuxi School of Medicine, Jiangnan University, Wuxi 214122, China;
2. Dean’s Office of hospital, Wuxi Children’s Hospital Affiliated to Jiangnan University, Wuxi 214122, China;
3. Department of Pediatric Neurology, Wuxi Children’s Hospital Affiliated to Jiangnan University, Wuxi 214122, China;

Corresponding author：

ZHU Lihong, Email: zlhyfb@126.com

Keywords：

Timing it right; Continuous care; Epilepsy; School-age children

DOI：

10.7507/2096-0247.202312001

Video：

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Objective Based on “timing it right”, the application effect of the continuous nursing program in school-age children with epilepsy. Methods A total of 80 epileptic children and primary caregiver who were admitted to the Department of Neurology of Wuxi a third class A children’s hospital from October 2022 to March 2023 were selected as the research objects, and were divided into experimental group and control group with 40 cases each by convenience sampling. The control group was given routine care, and the intervention group was given a continuous nursing for school-age children with epilepsy based on timing theory. The continuous nursing process was divided into four stages: diagnosis stage, treatment stage,preparation stage, and convalescence stage.According to the needs of the different stages of the disease,In each stage,the intervention was carried out from disease cognition, emotional support, Correct care, psychological adjustment, rehabilitation training. TO Reduce the burden on caregivers and promote the recovery of patients. The results of Knowledge of the disease, burden of Caregiver and quality of life were compared between the two groups before intervention, before discharge and Three months after discharge through Epileptic disease health knowledge questionnaire, Zarit Care-giver Burden Interview, PedsQTM4.0. Results After intervention, The degree of seizures-related knowledge mastered by the main caregivers of children with epilepsy, the quality of life were significantly improved (all P<0.05). Conclusion The implementation of the continuity nursing plan based on the timing theory can improve the knowledge level of the main caregivers of epilepsy children, improve their caring ability, and improve the quality of life of epilepsy children.

Citation： QIN Kaiqin, ZHU Lihong, ZHANG Linhui. Application of continuous nursing for school-age children with epilepsy based on timing theory. Journal of Epilepsy, 2024, 10(1): 50-56. doi: 10.7507/2096-0247.202312001 Copy

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10.	孙文杰. 基于HBM和Orem自护理论的“四阶段五维”护理干预在癫痫患儿主要照护者中的应用研究. 南昌大学医学部, 硕士学位论文, 2021.
11.	DiBartolo MC. Caregiver burden. Instruments, challenges, and nursing implications for individuals with Alzheimer's disease and their caregivers. J Gerontol Nurs, 2000, 26(6): 46-53.
12.	王烈, 杨小湜, 侯哲, 等. 护理者负担量表中文版的应用与评价. 中国公共卫生, 2006, 22(8): 970-972.
13.	李茹, 陈玲玲, 段晓侠, 等. 老年慢性病照顾者负担与社会支持的关系. 中国老年学杂志, 2019, 39(7): 1753-1755.
14.	武晓红, 李红梅, 张俊, 等. 乳腺癌病人家庭照顾者心理适应现状及其影响因素分析. 护理研究, 2022, 36(4): 645-649.
15.	蒲晓玲, 杨眉. 慢性阻塞性肺疾病患者照顾者负担及影响因素分析. 预防学, 2019, 31(11): 1124-1127.
16.	卢奕云, 田琪, 郝元涛, 等. 儿童生存质量测定量表PedsQL4. 0中文版的信度和效度分析. 中山大学学报(医学科学版), 2008, 29(3): 328-331.
17.	卢奕云, 郝元涛, 静进, 等. 儿童生存质量测定量表PedsQLTM的结构及应用概况. 现代预防医学, 2006, 33(5): 732-734.
18.	张姗, 盛桂梅, 朱应红, 等. 儿童癫痫主要照顾者院外护理服务需求的质性研究. 齐鲁护理杂志, 2020, 26(13): 13-16.
19.	李双子, 张萍, 王婷, 等. 不同类型及年龄癫痫患儿家属延续护理需求调查及分析. 循证护理, 2021, 7(7): 924-928.
20.	Gao Y, Tang X, Wen Y, et al. Effects of the hospital-community-family ternary linkage continuous nursing model on compliance, cognitive function, resilience, and quality of life for children withepilepsy: a retrospective study. Transl Pediatr, 2022, 11(2): 239-248.
21.	李晓宇. 家庭管理模式在癫痫患儿延续护理中的应用研究. 青岛大学, 硕士学位论文, 2021.
22.	花倩, 周进芳. 癫痫患儿延续性护理服务需求研究进展. 中华现代护理杂志, 2021, 27(28): 3908-3911.
23.	王彦利, 徐艳, 孙娟, 等. 以奥马哈系统理论为指导的延续性护理在癫痫患儿管理中的效果观察. 护理实践与研究, 2021, 18(15): 2289-2292.
24.	余祖琳, 潘月瑢, 余卫红, 等. 癫痫儿童主要照顾者的积极心理品质、益处发现与照顾负担的关系. 中国健康心理学杂志, 2022, 30(8): 1128-1132.
25.	温旭, 邓璐瑶, 曾珊, 等. 多站式延续性护理在学龄前癫痫患儿出院后主要照顾者中的应用. 齐鲁护理杂志, 2021, 27(24): 37-39.
26.	闫晨歌, 贾天明, 张晓莉, 等. 癫痫患儿生存现状及相关影响因素分析. 国际儿科学杂志, 2020, 47(4): 288-293.
27.	刘志敏, 桑琳霞, 李文玲, 等. 延续护理对耐药性癫痫患儿术后生命质量和日常生活能力的影响. 护理研究, 2022, 36(16): 3000-3002.

1. Ali A. Global health: epilepsy. Seminars in Neurology, 2018, 38(2): 191-199.
2. 常琳, 王小姗. 中国癫痫流行病学调查研究进展. 国际神经病学神经外科学杂志, 2012, 39(2): 161-164.
3. 张雯, 王玉梅, 祝文嫔. 医院-社区-家庭三元联动护理模式在癫痫患儿延续性护理中的应用. 中华现代护理杂志, 2019, 25(33): 4273-4276.
4. Lavin B, Dormond C, Scantlebury MH, et al. Bridging the healthcare gap: building the case for epilepsy virtual clinics in the current healthcare environment. Epilepsy Behav, 2020, 111: 107262.
5. 西磊. 个体化延续性护理对癫痫患儿及家庭生活质量影响的研究. 内蒙古医科大学, 硕士学位论文, 2019.
6. Cameron JI, Gignac MA. “Timing It Right”: a conceptual framework for addressing the support needs of family caregivers to stroke survivors from the hospital to the home. Patient Educ Couns, 2008, 70(3): 305-314.
7. Specchio N, Wirrell EC, Scheffer IE, et al. International League Against Epilepsy classification and definition of epilepsy syndromes with onset in childhood: Position paper by the ILAE Task Forceon Nosology and Definitions. Epilepsia, 2022, 63(6): 1398-1442.
8. 余祖琳. 基于赋能理论的情绪与压力管理方案在癫痫患儿照顾者中的应用研究. 郑州大学, 硕士学位论文, 2021.
9. 中华医学会儿科学分会神经学组. 儿童癫痫长程管理专家共识. 中华儿科杂志, 2013, 51(9): 699-703.
10. 孙文杰. 基于HBM和Orem自护理论的“四阶段五维”护理干预在癫痫患儿主要照护者中的应用研究. 南昌大学医学部, 硕士学位论文, 2021.
11. DiBartolo MC. Caregiver burden. Instruments, challenges, and nursing implications for individuals with Alzheimer's disease and their caregivers. J Gerontol Nurs, 2000, 26(6): 46-53.
12. 王烈, 杨小湜, 侯哲, 等. 护理者负担量表中文版的应用与评价. 中国公共卫生, 2006, 22(8): 970-972.
13. 李茹, 陈玲玲, 段晓侠, 等. 老年慢性病照顾者负担与社会支持的关系. 中国老年学杂志, 2019, 39(7): 1753-1755.
14. 武晓红, 李红梅, 张俊, 等. 乳腺癌病人家庭照顾者心理适应现状及其影响因素分析. 护理研究, 2022, 36(4): 645-649.
15. 蒲晓玲, 杨眉. 慢性阻塞性肺疾病患者照顾者负担及影响因素分析. 预防学, 2019, 31(11): 1124-1127.
16. 卢奕云, 田琪, 郝元涛, 等. 儿童生存质量测定量表PedsQL4. 0中文版的信度和效度分析. 中山大学学报(医学科学版), 2008, 29(3): 328-331.
17. 卢奕云, 郝元涛, 静进, 等. 儿童生存质量测定量表PedsQLTM的结构及应用概况. 现代预防医学, 2006, 33(5): 732-734.
18. 张姗, 盛桂梅, 朱应红, 等. 儿童癫痫主要照顾者院外护理服务需求的质性研究. 齐鲁护理杂志, 2020, 26(13): 13-16.
19. 李双子, 张萍, 王婷, 等. 不同类型及年龄癫痫患儿家属延续护理需求调查及分析. 循证护理, 2021, 7(7): 924-928.
20. Gao Y, Tang X, Wen Y, et al. Effects of the hospital-community-family ternary linkage continuous nursing model on compliance, cognitive function, resilience, and quality of life for children withepilepsy: a retrospective study. Transl Pediatr, 2022, 11(2): 239-248.
21. 李晓宇. 家庭管理模式在癫痫患儿延续护理中的应用研究. 青岛大学, 硕士学位论文, 2021.
22. 花倩, 周进芳. 癫痫患儿延续性护理服务需求研究进展. 中华现代护理杂志, 2021, 27(28): 3908-3911.
23. 王彦利, 徐艳, 孙娟, 等. 以奥马哈系统理论为指导的延续性护理在癫痫患儿管理中的效果观察. 护理实践与研究, 2021, 18(15): 2289-2292.
24. 余祖琳, 潘月瑢, 余卫红, 等. 癫痫儿童主要照顾者的积极心理品质、益处发现与照顾负担的关系. 中国健康心理学杂志, 2022, 30(8): 1128-1132.
25. 温旭, 邓璐瑶, 曾珊, 等. 多站式延续性护理在学龄前癫痫患儿出院后主要照顾者中的应用. 齐鲁护理杂志, 2021, 27(24): 37-39.
26. 闫晨歌, 贾天明, 张晓莉, 等. 癫痫患儿生存现状及相关影响因素分析. 国际儿科学杂志, 2020, 47(4): 288-293.
27. 刘志敏, 桑琳霞, 李文玲, 等. 延续护理对耐药性癫痫患儿术后生命质量和日常生活能力的影响. 护理研究, 2022, 36(16): 3000-3002.

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