- 执笔马雪萍（四川大学华西医院）、冯灵（四川大学华西医院）、文楠（四川大学华西医院）、欧阳为秀（四川大学华西医院）、李晓宁（空军军医大学第一附属医院）、李倩（首都医科大学附属北京天坛医院）、许雅芳（复旦大学附属华山医院）、潘军红（首都医科大学三博脑科医院）、彭健宇（四川大学华西天府医院）、蒋倩（四川大学华西天府医院）;
中国抗癫痫协会护理专业委员会,
Email: fengling216@163.com
| 1. | GBD Neurology Collaborators. Global, regional, and national burden of neurological disorders, 1990-2016: a systematic analysis for the Global Burden of Disease Study 2016. Lancet Neurol, 2019, 18(5): 459-480. |
| 2. | Austin JK, Carr DA, Hermann BP. Living Well II: a review of progress since 2003. Epilepsy Behav, 2006, 9(3): 386-93. |
| 3. | Critical Care Services Ontario (CCSO). Clinical guidelines for the management of epilepsy in adults and children. Toronto, 2020: 1-50. |
| 4. | 王春青, 胡雁. JBI证据预分级及证据推荐级别系统(2014版). 护士进修杂志, 2015, 30(11): 964-967. |
| 5. | Turan Gürhopur FD, Işler Dalgiç A. The effect of a modular education program for children with epilepsy and their parents on disease management. Epilepsy Behav, 2018, 78: 210-218. |
| 6. | Smith G, Wagner JL, Edwards JC. Epilepsy update, part 2: nursing care and evidence-based treatment. Am J Nurs, 2015, 115(6): 34-44; quiz 45-6. |
| 7. | Lee JH, Ju HO, Lee YJ. Effects of an algorithm-based education program on nursing care for children with epilepsy by hospital nurses. Child Health Nurs Res, 2019, 25(3): 324-332. |
| 8. | Keshvari M, Hedayati B, Moeini M, et al. A survey on the effect of implementation of a family-centered empowerment model on blood pressure and empowerment dimensions in the elderly people with hypertension. J Educ Health Promot, 2015, 30(4): 94. |
| 9. | 王英杰, 李杨. 以家庭为中心的教育干预对活动性癫痫患儿服药依从性及健康状况的影响. 中华护理杂志, 2015, 50(10): 1157-1162. |
| 10. | 尹娟鹉, 石绍南, 李凤辉, 等. “以家庭为中心”的护理在癫痫患儿健康教育中的应用与效果分析. 当代护士(下旬刊), 2014(10): 135-137. |
| 11. | 尹安春, 史铁英 著. 内科护理健康教育路径. 北京: 人民卫生出版社, 2014: 3. |
| 12. | 梁娟. 临床护理路径在癫痫病人健康教育中的应用. 护理研究, 2009, 23(12): 1082-1083. |
| 13. | 时红, 张莉芸, 张改连, 等. 基于互联网的健康教育对高尿酸血症病人的影响. 护理研究, 2021, 35(6): 1103-1105. |
| 14. | Scottish intercollegiate Guidelines Network (SIGN). SIGN 159 Epilepsies in children and young people: investigative procedures and management. Edinburgh, 2021: 1-112. |
| 15. | Scottish intercollegiate Guidelines Network (SIGN). SIGN143 Diagnosis and management of epilepsy in adult. Edinburgh, 2018: 1-104. |
| 16. | National Institute for Health and Clinical Excellence (NICE). NG217 Epilepsies in children, young people and adults. Manchester, 2022: 1-156. |
| 17. | 中国抗癫痫协会. 临床诊疗指南-癫痫疾病分册(2023修订版). 北京, 人民卫生出版社, 2023: 10-39. |
| 18. | Belayneh Z, Mekuriaw B. A systematic review and meta-analysis of anti-epileptic medication non-adherence among people with epilepsy in Ethiopia. Arch Public Health, 2020, 78: 23. |
| 19. | Al-Aqeel S, Gershuni O, Al-Sabhan J, et al. Strategies for improving adherence to antiepileptic drug treatment in people with epilepsy. Cochrane Database Syst Rev, 2017, 2(2): CD008312. |
| 20. | 顾夏颖, 杨露, 狄晴. 癫痫患者手术后撤药研究进展. 中国神经精神疾病杂志, 2023, 49(12): 753-757. |
| 21. | Li ZR, Wang CY, Lin WW, et al. Handling delayed or missed dose of antiseizure medications: a model-informed individual remedial dosing. Neurology, 2023, 100(9): e921-e931. |
| 22. | Gloss D, Pargeon K, Pack A, et al. Antiseizure medication withdrawal in seizure-free patients: practice advisory update summary: report of the AAN guideline subcommittee. Neurology, 2021, 97(23): 1072-1081. |
| 23. | 中国抗癫痫协会青年委员会, 中国抗癫痫协会精准医学与药物不良反应监测专业委员会. 抗癫痫发作药物不良反应管理指南(2023). 中国当代儿科杂志, 2023, 25(9): 889-900. |
| 24. | 中华医学会神经病学分会, 中华医学会神经病学分会脑电图与癫痫学组. 抗癫痫发作药物联合使用中国专家共识. 中华神经科杂志, 2024, 57(2): 108-117. |
| 25. | 尹延肖, 余年, 周龙祥, 等. 癫痫发作的诱发因素调查. 中华神经科杂志, 2017, 50(4): 255-260. |
| 26. | 曹咪, 邓艳春. 癫痫发作诱发因素的初步调查. 癫痫杂志, 2019, 5(4): 263-267. |
| 27. | Prasad V, Kendrick D, Sayal K, et al. Injury among children and young adults with epilepsy. Pediatrics, 2014, 133(5): 827-35. |
| 28. | Mollaoğlu M, Bolayir E. Injuries in patients with epilepsy and some factors associated with injury. Noro Psikiyatr Ars, 2013, 50(3): 269-273. |
| 29. | Nashef L. Sudden unexpected death in epilepsy: terminology and definitions. Epilepsia, 1997, 38(11 Suppl): S6-8. |
| 30. | Devinsky O, Hesdorffer DC, Thurman DJ, et al. Sudden unexpected death in epilepsy: epidemiology, mechanisms, and prevention. Lancet Neurol, 2016, 15(10): 1075-88. |
| 31. | 蔡翊莹, 丁晶, 汪昕. 癫痫不明原因猝死的研究进展. 中华神经科杂志, 2020, 53(8): 631-635. |
| 32. | 薄琳, 王乾贝, 郑颖, 等. 以癫痫日记APP为主导的远程干预在青少年癫痫病人中的应用. 护理研究, 2019, 33(22): 3964-3968. |
| 33. | 刘美满, 沈寻, 王文蕾, 等. 医护一体化预见性护理在癫痫患儿迷走神经刺激术围手术期中的应用. 中华现代护理杂志, 2023, 29(34): 4706-4710. |
| 34. | 刘文华. 分析癫痫病人围手术期护理的方法. 临床医药文献电子杂志, 2018, 5(68): 68+70. |
| 35. | 王会, 程莲, 吕明. 脑深部电刺激术治疗帕金森病109例围术期护理. 齐鲁护理杂志, 2017, 23(12): 99-100. |
| 36. | 徐小飞, 赵晓辉, 吕彦恩. 癫痫患者长程视频脑电监测的护理. 齐鲁护理杂志, 2014, 20(4): 58-59. |
| 37. | 中华医学会儿科学分会神经学组, 中国抗癫痫协会, 中华儿科杂志编辑委员会. 生酮饮食疗法在癫痫及相关神经系统疾病中的应用专家共识. 中华儿科杂志, 2019, 57(11): 820-825. |
| 38. | 中国医师协会神经内科医师分会儿童神经专业委员会, 中华医学会儿科学分会神经学组. 生酮饮食治疗儿童癫痫性脑病循证指南. 中华实用儿科临床杂志, 2019, 34(12): 881-888. |
| 39. | Scott AJ, Sharpe L, Hunt C, et al. Anxiety and depressive disorders in people with epilepsy: a meta-analysis. Epilepsia, 2017, 58(6): 973-982. |
| 40. | Yang Y, Yang M, Shi Q, et al. Risk factors for depression in patients with epilepsy: a meta-analysis. Epilepsy Behav, 2020, 106: 107030. |
| 41. | Ekinci O, Titus JB, Rodopman AA, et al. Depression and anxiety in children and adolescents with epilepsy: prevalence, risk factors, and treatment. Epilepsy Behav, 2009, 14(1): 8-18. |
| 42. | Royal College of Obstertricians & Gynaecologists (RCOG). Epilepsy in pregnancy. Green-top guideline, London, 2016, 26: 1-33. |
| 43. | Tomson T, Landmark CJ, Battino D. Antiepileptic drug treatment in pregnancy: changes in drug disposition and their clinical implications. Epilepsia, 2013, 54(3): 405-414. |
| 44. | Pack AM, Oskoui M, Williams Roberson S, et al. Teratogenesis, perinatal, and neurodevelopmental outcomes after in utero exposure to antiseizure medication: practice guideline from the AAN, AES, and SMFM. Neurology, 2024, 102(11): e209279. |
| 45. | 中华医学会神经病学分会脑电图与癫痫学组. 中国围妊娠期女性癫痫患者管理指南. 中华神经科杂志, 2021, 54(6): 539-544. |
| 46. | Battino D, Tomson T, Bonizzoni E, et al. EURAP Study Group. Seizure control and treatment changes in pregnancy: observations from the EURAP epilepsy pregnancy registry. Epilepsia, 2013, 54(9): 1621-1627. |
| 47. | Hope OA, Harris KM. Management of epilepsy during pregnancy and lactation. BMJ, 2023, 382: e074630. |
| 48. | Sveinsson O, Tomson T. Epilepsy and menopause: potential implications for pharmacotherapy. Drugs Aging, 2014, 31(9): 671-675. |
| 49. | Harden CL. Menopause and bone density issues for women with epilepsy. Neurology, 2003, 61(6 Suppl 2): S16-22. |
| 50. | Blum RW, Garell D, Hodgman CH, et al. Transition from childcentered to adult health-care systems for adolescents with chronic conditions: a position paper of the society for adolescent medicine. J Adolesc Health, 1993, 14(7): 570-576. |
| 51. | 陈海丽, 肖志田, 叶敬花, 等. 青少年癫痫患儿过渡期护理需求的研究进展. 解放军护理杂志, 2021, 38(5): 71-73,85. |
| 52. | Lewis SA, Noyes J, Mackereth S. Knowledge and information needs of young people with epilepsy and their parents: Mixed-method systematic review. BMC Pediatr, 2010, 10: 103. |
| 53. | Fleeman N, Bradley PM, Panebianco M, et al. Care delivery and self-management strategies for children with epilepsy. Cochrane Database Syst Rev, 2022, 4(4): CD006245. |
| 54. | Ridsdale L, Wojewodka G, Robinson EJ, et al. The effectiveness of a group self-management education course for adults with poorly controlled epilepsy, SMILE (UK): a randomized controlled trial. Epilepsia, 2018, 59(5): 1048-1061. |
| 55. | Ibinda F, Mbuba CK, Kariuki SM, et al. Evaluation of Kilifi epilepsy education programme: a randomized controlled trial. Epilepsia, 2014, 55(2): 344-352. |
- 1. GBD Neurology Collaborators. Global, regional, and national burden of neurological disorders, 1990-2016: a systematic analysis for the Global Burden of Disease Study 2016. Lancet Neurol, 2019, 18(5): 459-480.
- 2. Austin JK, Carr DA, Hermann BP. Living Well II: a review of progress since 2003. Epilepsy Behav, 2006, 9(3): 386-93.
- 3. Critical Care Services Ontario (CCSO). Clinical guidelines for the management of epilepsy in adults and children. Toronto, 2020: 1-50.
- 4. 王春青, 胡雁. JBI证据预分级及证据推荐级别系统(2014版). 护士进修杂志, 2015, 30(11): 964-967.
- 5. Turan Gürhopur FD, Işler Dalgiç A. The effect of a modular education program for children with epilepsy and their parents on disease management. Epilepsy Behav, 2018, 78: 210-218.
- 6. Smith G, Wagner JL, Edwards JC. Epilepsy update, part 2: nursing care and evidence-based treatment. Am J Nurs, 2015, 115(6): 34-44; quiz 45-6.
- 7. Lee JH, Ju HO, Lee YJ. Effects of an algorithm-based education program on nursing care for children with epilepsy by hospital nurses. Child Health Nurs Res, 2019, 25(3): 324-332.
- 8. Keshvari M, Hedayati B, Moeini M, et al. A survey on the effect of implementation of a family-centered empowerment model on blood pressure and empowerment dimensions in the elderly people with hypertension. J Educ Health Promot, 2015, 30(4): 94.
- 9. 王英杰, 李杨. 以家庭为中心的教育干预对活动性癫痫患儿服药依从性及健康状况的影响. 中华护理杂志, 2015, 50(10): 1157-1162.
- 10. 尹娟鹉, 石绍南, 李凤辉, 等. “以家庭为中心”的护理在癫痫患儿健康教育中的应用与效果分析. 当代护士(下旬刊), 2014(10): 135-137.
- 11. 尹安春, 史铁英 著. 内科护理健康教育路径. 北京: 人民卫生出版社, 2014: 3.
- 12. 梁娟. 临床护理路径在癫痫病人健康教育中的应用. 护理研究, 2009, 23(12): 1082-1083.
- 13. 时红, 张莉芸, 张改连, 等. 基于互联网的健康教育对高尿酸血症病人的影响. 护理研究, 2021, 35(6): 1103-1105.
- 14. Scottish intercollegiate Guidelines Network (SIGN). SIGN 159 Epilepsies in children and young people: investigative procedures and management. Edinburgh, 2021: 1-112.
- 15. Scottish intercollegiate Guidelines Network (SIGN). SIGN143 Diagnosis and management of epilepsy in adult. Edinburgh, 2018: 1-104.
- 16. National Institute for Health and Clinical Excellence (NICE). NG217 Epilepsies in children, young people and adults. Manchester, 2022: 1-156.
- 17. 中国抗癫痫协会. 临床诊疗指南-癫痫疾病分册(2023修订版). 北京, 人民卫生出版社, 2023: 10-39.
- 18. Belayneh Z, Mekuriaw B. A systematic review and meta-analysis of anti-epileptic medication non-adherence among people with epilepsy in Ethiopia. Arch Public Health, 2020, 78: 23.
- 19. Al-Aqeel S, Gershuni O, Al-Sabhan J, et al. Strategies for improving adherence to antiepileptic drug treatment in people with epilepsy. Cochrane Database Syst Rev, 2017, 2(2): CD008312.
- 20. 顾夏颖, 杨露, 狄晴. 癫痫患者手术后撤药研究进展. 中国神经精神疾病杂志, 2023, 49(12): 753-757.
- 21. Li ZR, Wang CY, Lin WW, et al. Handling delayed or missed dose of antiseizure medications: a model-informed individual remedial dosing. Neurology, 2023, 100(9): e921-e931.
- 22. Gloss D, Pargeon K, Pack A, et al. Antiseizure medication withdrawal in seizure-free patients: practice advisory update summary: report of the AAN guideline subcommittee. Neurology, 2021, 97(23): 1072-1081.
- 23. 中国抗癫痫协会青年委员会, 中国抗癫痫协会精准医学与药物不良反应监测专业委员会. 抗癫痫发作药物不良反应管理指南(2023). 中国当代儿科杂志, 2023, 25(9): 889-900.
- 24. 中华医学会神经病学分会, 中华医学会神经病学分会脑电图与癫痫学组. 抗癫痫发作药物联合使用中国专家共识. 中华神经科杂志, 2024, 57(2): 108-117.
- 25. 尹延肖, 余年, 周龙祥, 等. 癫痫发作的诱发因素调查. 中华神经科杂志, 2017, 50(4): 255-260.
- 26. 曹咪, 邓艳春. 癫痫发作诱发因素的初步调查. 癫痫杂志, 2019, 5(4): 263-267.
- 27. Prasad V, Kendrick D, Sayal K, et al. Injury among children and young adults with epilepsy. Pediatrics, 2014, 133(5): 827-35.
- 28. Mollaoğlu M, Bolayir E. Injuries in patients with epilepsy and some factors associated with injury. Noro Psikiyatr Ars, 2013, 50(3): 269-273.
- 29. Nashef L. Sudden unexpected death in epilepsy: terminology and definitions. Epilepsia, 1997, 38(11 Suppl): S6-8.
- 30. Devinsky O, Hesdorffer DC, Thurman DJ, et al. Sudden unexpected death in epilepsy: epidemiology, mechanisms, and prevention. Lancet Neurol, 2016, 15(10): 1075-88.
- 31. 蔡翊莹, 丁晶, 汪昕. 癫痫不明原因猝死的研究进展. 中华神经科杂志, 2020, 53(8): 631-635.
- 32. 薄琳, 王乾贝, 郑颖, 等. 以癫痫日记APP为主导的远程干预在青少年癫痫病人中的应用. 护理研究, 2019, 33(22): 3964-3968.
- 33. 刘美满, 沈寻, 王文蕾, 等. 医护一体化预见性护理在癫痫患儿迷走神经刺激术围手术期中的应用. 中华现代护理杂志, 2023, 29(34): 4706-4710.
- 34. 刘文华. 分析癫痫病人围手术期护理的方法. 临床医药文献电子杂志, 2018, 5(68): 68+70.
- 35. 王会, 程莲, 吕明. 脑深部电刺激术治疗帕金森病109例围术期护理. 齐鲁护理杂志, 2017, 23(12): 99-100.
- 36. 徐小飞, 赵晓辉, 吕彦恩. 癫痫患者长程视频脑电监测的护理. 齐鲁护理杂志, 2014, 20(4): 58-59.
- 37. 中华医学会儿科学分会神经学组, 中国抗癫痫协会, 中华儿科杂志编辑委员会. 生酮饮食疗法在癫痫及相关神经系统疾病中的应用专家共识. 中华儿科杂志, 2019, 57(11): 820-825.
- 38. 中国医师协会神经内科医师分会儿童神经专业委员会, 中华医学会儿科学分会神经学组. 生酮饮食治疗儿童癫痫性脑病循证指南. 中华实用儿科临床杂志, 2019, 34(12): 881-888.
- 39. Scott AJ, Sharpe L, Hunt C, et al. Anxiety and depressive disorders in people with epilepsy: a meta-analysis. Epilepsia, 2017, 58(6): 973-982.
- 40. Yang Y, Yang M, Shi Q, et al. Risk factors for depression in patients with epilepsy: a meta-analysis. Epilepsy Behav, 2020, 106: 107030.
- 41. Ekinci O, Titus JB, Rodopman AA, et al. Depression and anxiety in children and adolescents with epilepsy: prevalence, risk factors, and treatment. Epilepsy Behav, 2009, 14(1): 8-18.
- 42. Royal College of Obstertricians & Gynaecologists (RCOG). Epilepsy in pregnancy. Green-top guideline, London, 2016, 26: 1-33.
- 43. Tomson T, Landmark CJ, Battino D. Antiepileptic drug treatment in pregnancy: changes in drug disposition and their clinical implications. Epilepsia, 2013, 54(3): 405-414.
- 44. Pack AM, Oskoui M, Williams Roberson S, et al. Teratogenesis, perinatal, and neurodevelopmental outcomes after in utero exposure to antiseizure medication: practice guideline from the AAN, AES, and SMFM. Neurology, 2024, 102(11): e209279.
- 45. 中华医学会神经病学分会脑电图与癫痫学组. 中国围妊娠期女性癫痫患者管理指南. 中华神经科杂志, 2021, 54(6): 539-544.
- 46. Battino D, Tomson T, Bonizzoni E, et al. EURAP Study Group. Seizure control and treatment changes in pregnancy: observations from the EURAP epilepsy pregnancy registry. Epilepsia, 2013, 54(9): 1621-1627.
- 47. Hope OA, Harris KM. Management of epilepsy during pregnancy and lactation. BMJ, 2023, 382: e074630.
- 48. Sveinsson O, Tomson T. Epilepsy and menopause: potential implications for pharmacotherapy. Drugs Aging, 2014, 31(9): 671-675.
- 49. Harden CL. Menopause and bone density issues for women with epilepsy. Neurology, 2003, 61(6 Suppl 2): S16-22.
- 50. Blum RW, Garell D, Hodgman CH, et al. Transition from childcentered to adult health-care systems for adolescents with chronic conditions: a position paper of the society for adolescent medicine. J Adolesc Health, 1993, 14(7): 570-576.
- 51. 陈海丽, 肖志田, 叶敬花, 等. 青少年癫痫患儿过渡期护理需求的研究进展. 解放军护理杂志, 2021, 38(5): 71-73,85.
- 52. Lewis SA, Noyes J, Mackereth S. Knowledge and information needs of young people with epilepsy and their parents: Mixed-method systematic review. BMC Pediatr, 2010, 10: 103.
- 53. Fleeman N, Bradley PM, Panebianco M, et al. Care delivery and self-management strategies for children with epilepsy. Cochrane Database Syst Rev, 2022, 4(4): CD006245.
- 54. Ridsdale L, Wojewodka G, Robinson EJ, et al. The effectiveness of a group self-management education course for adults with poorly controlled epilepsy, SMILE (UK): a randomized controlled trial. Epilepsia, 2018, 59(5): 1048-1061.
- 55. Ibinda F, Mbuba CK, Kariuki SM, et al. Evaluation of Kilifi epilepsy education programme: a randomized controlled trial. Epilepsia, 2014, 55(2): 344-352.