Objective We aimed to develop a self-management assessment scale for children with epilepsy and test its reliability and validity. Methods A research group was established, and the items were revised through literature review, group discussion and pre-investigation, and 280 patients with epilepsy in children were included, and the reliability and validity of the scale were tested. Results 28 items in 4 dimensions were developed to form the scale, namely, knowledge and belief of diseases and medication, compliance of medication and treatment, self-efficacy of medication and obstacles of medication. Confirmatory factor analysis extracted four common factors with characteristic roots greater than 1, and the cumulative variance explanation rate was 65.639%. The factor load of all items is > 0.5. The overall Cronbach’s alpha is 0.880, and the coefficients in seven measurement dimensions are all greater than 0.8. Conclusion The self-management assessment scale for children’s epilepsy drugs has good reliability and validity, and can provide a measuring tool for the drug management of children’s epilepsy diseases.
Objective To systematically evaluate the influencing factors, intervention measures and management mode of epilepsy patients in China, so as to provide evidence support for ensuring the therapeutic effect of epilepsy patients. Methods PubMed, EMBASE, Cochrane Library, CBM, CNKI, VIP, Wanfang and other domestic and foreign databases were systematically searched, and the literature on influencing factors, intervention measures and management modes of self-management behavior of epilepsy patients in China was included. Descriptive methods were used to analyze the results. Results A total of 21 studies were included, including 2 studies on influencing factors, 14 studies on intervention measures and 5 studies on management mode. The participants of 20 studies is adult epilepsy patients, and one study is adolescent epilepsy aged 13 ~ 17, with a sample size of 40 ~ 327 cases and a median sample size of 70 cases. The results showed that self-management behavior is positively correlated with self-efficacy, bachelor degree or above, female and operation duration < 3 hours, and negatively correlated with 30 ~ 50 years old. The self-management behavior scale score, medication compliance, treatment satisfaction, quality of life, seizure frequency, symptom checklist, anxiety and depression score in the intervention group were better than those in the control group. After the intervention of self- management mode, the self-management score, treatment efficiency, quality of life and medication compliance of the intervention group were better than those of the control group. Conclusions The level of self-management of epilepsy patients in China is insufficient, and the influencing factors and intervention measures are single, lacking integrated intervention measures and management models based on different levels of individuals, families, medical system and society. It is suggested that the self-management model of epileptic patients should be constructed based on evidence to improve self-efficacy and self-management level.