Method of Patient Values and Preferences Research in Development of Clinical Practice Guidelines_Chinese Journal of Evidence-Based Medicine

Authors：

 XIERan ^1,2 ,  CHENYao-long ^3,4,5 , CHENHao ⁶ , WANGQi ^3,4,5 , ZHAISuo-di ¹ ,  ZHAORong-sheng ¹

1. Department of Pharmacy, Peking University Third Hospital, Beijing 100191, China;
2. Department of Pharmacy Administration and Clinical Pharmacy, School of Pharmaceutical Sciences, Peking University Health Science Center, Beijing 100191, China;
3. Key Laboratory of Evidence-based Medicine and Knowledge Translation of Gansu Province, Lanzhou 730000, China;
4. Evidence-based Medicine Center, School of Basic Medical Sciences, Lanzhou University, Lanzhou 730000, China;
5. Chinese GRADE Center, Lanzhou University, Lanzhou 730000, China;
6. The Second College of Clinical Medicine, Nanjing University of Chinese Medicine, Nanjing 210023, China;

Corresponding author：

CHENYao-long, Email: chenyaolong21@163.com; ZHAORong-sheng, Email: zhao_rongsheng@163.com

Keywords：

Patient value; Patient preference; Evidence-based guideline; Clinical practice guideline; Guideline development

DOI：

10.7507/1672-2531.20150097

Video：

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Patient values and preferences is one of the elements of evidence-based medicine research, which is also an important part that should be considered in the development of evidence-based guidelines in the present and future. However, the research in this field in China has just begun. This article gives a brief introduction of its concepts, methods, influence factors based on the international researches of patient values and preferences and a brief description of the development in China, in order to provide references for the development of evidence-based guidelines based on the consideration of patient values and preferences in the future.

Citation： XIERan, CHENYao-long, CHENHao, WANGQi, ZHAISuo-di, ZHAORong-sheng. Method of Patient Values and Preferences Research in Development of Clinical Practice Guidelines. Chinese Journal of Evidence-Based Medicine, 2015, 15(5): 586-591. doi: 10.7507/1672-2531.20150097 Copy

1.	Sackett D, Straus S, Richardson W, et al. Evidence-based medicine. How to practice and teach EBM 2^ed. Edinburgh:Churchill Livingstone, 2000.
2.	IOM (Institute of Medicine). Clinical Practice Guidelines We Can Trust. Washington, DC:The National Academies Press, 2011.
3.	MacLean S, Mulla S, Akl EA, et al. Patient values and preferences in decision making for antithrombotic therapy:a systematic review:Antithrombotic Therapy and Prevention of Thrombosis, 9th ed:American College of Chest Physicians Evidence-Based Clinical Practice Guidelines. Chest, 2012, 141(2 Suppl):e1S-23S.
4.	vander Weijden T, France L, Antoine B, et al. How to integrate individual patient values and Preferences in clinical practice guidelines? A research protocol. Implement Sci, 2010, 5(1):1-10.
5.	魏来临, 张岩, 邢冰. 疾病诊疗决策中如何具体融合患者的价值观. 医学与哲学(临床决策论坛版), 2008, 29(8):1-2.
6.	Adamson SJ, Bland JM, Hay EM, et al. Patients' preferences within randomised trials:systematic review and patient level meta-analysis. BMJ, 2008, 337:a1864.
7.	Thomson RG, Eccles MP, Steen IN, et al. A patient decision aid to support shared decision-making on anti-thrombotic treatment of patients with atrial fibrillation:randomised controlled trial. Qual Saf Health Care, 2007, 16(3):216-223.
8.	Pablo A, Victor MM, Ivan S, et al. Values and preferences in oral anticoagulation in patients with atrial fibrillation, physicians' and patients' perspectives:protocol for a two-phase study. BMC Health Serv Res, 2008, 8:221.
9.	Holbrook A, Labiris R, Goldsmith CH, et al. Influence of decision aids on patient preferences for anticoagulant therapy:a randomized trial. CMAJ, 2007, 176(11):1583-1587.
10.	Gage BF, Cardinalli AB, Owens DK. Cost-effectiveness of preference-based antithrombotic therapy for patients with nonvalvular atrial fibrillation. Stroke, 1998, 29(6):1083-1091.
11.	Thomson RG, Eccles MP, Steen IN, et al. A patient decision aid to support shared decision-making on anti-thrombotic treatment of patients with atrial fibrillation:randomised controlled trial. Qual Saf Health Care, 2007, 16(3):216-223.
12.	Howitt A, Armstrong D. Implementing evidence based medicine in general practice:audit and qualitative study of antithrombotic treatment for atrial fibrillation. BMJ, 1999, 318(7194):1324-1327.
13.	Locadia M, Stalmeier PF, Oort FJ, et al. A comparison of 3 valuation methods for temporary health states in patients treated with oral anticoagulants. Med Decis Making, 2004, 24(6):625-633.
14.	Prins MH, Guillemin I, Gilet H, et al. Scoring and psychometric validation of the Perception of Anticoagulant Treatment Questionnaire (PACT-Q). Health Qual Life Outcomes, 2009, 7:30.
15.	Lenert LA, Soetikno RM. Automated computer interviews to elicit utilities:potential applications in the treatment of deep venous thrombosis. J Am Med Inform Assoc, 1997, 4(1):49-56.
16.	Alonso-Coello P, Montori VM, Solà I, et al. Values and preferences in oral anticoagulation in patients with atrial fibrillation, physicians' and patients' perspectives:protocol for a two-phase study. BMC Health Serv Res, 2008, 8:21.
17.	伍红艳. 健康效用值测量研究. 沈阳:沈阳药科大学, 2012.
18.	邢文荣, 邵元福, 陈盛新, 等. 健康效用值及其测量方法的选择. 药物流行病学杂志, 1999, 8(4):234-237.
19.	Man-Son-Hing M, Laupacis A, O'Connor AM, et al. Stroke Prevention in Atrial Fibrillation Investigators:A patient decision aid regarding antithrombotic therapy for stroke prevention in atrial fi brillation:a randomized controlled trial. JAMA, 1999, 282(8):737-743.
20.	O'Meara JJ Ⅲ, McNutt RA, Evans AT, et al. A decision analysis of streptokinase plus heparin as compared with heparin alone for deep-vein thrombosis. N Engl J Med, 1994, 330(26):1864-1869.
21.	Bergus GR, Levin IP, Elstein AS. Presenting risks and benefits to patients. J Gen Intern Med, 2002, 17(8):612-617.
22.	Man-Son-Hing M, Laupacis A, O'Connor AM, et al. Patient preference-based treatment thresholds and recommendations:a comparison of decision analytic modeling with the probability-tradeoff technique. Med Decis Making, 2000, 20(4):394-403.
23.	Stanek EJ, Cheng JW, Peeples PJ, et al. Patient preferences for thrombolytic therapy in acute myocardial infarction. Med Decis Making, 1997, 17(4):464-471.
24.	Available at:http://xueke.njucm.edu.cn/ShowNews.aspx?N_Id=69&TypeNum=-202&NewsType=-202.

1. Sackett D, Straus S, Richardson W, et al. Evidence-based medicine. How to practice and teach EBM 2^ed. Edinburgh:Churchill Livingstone, 2000.
2. IOM (Institute of Medicine). Clinical Practice Guidelines We Can Trust. Washington, DC:The National Academies Press, 2011.
3. MacLean S, Mulla S, Akl EA, et al. Patient values and preferences in decision making for antithrombotic therapy:a systematic review:Antithrombotic Therapy and Prevention of Thrombosis, 9th ed:American College of Chest Physicians Evidence-Based Clinical Practice Guidelines. Chest, 2012, 141(2 Suppl):e1S-23S.
4. vander Weijden T, France L, Antoine B, et al. How to integrate individual patient values and Preferences in clinical practice guidelines? A research protocol. Implement Sci, 2010, 5(1):1-10.
5. 魏来临, 张岩, 邢冰. 疾病诊疗决策中如何具体融合患者的价值观. 医学与哲学(临床决策论坛版), 2008, 29(8):1-2.
6. Adamson SJ, Bland JM, Hay EM, et al. Patients' preferences within randomised trials:systematic review and patient level meta-analysis. BMJ, 2008, 337:a1864.
7. Thomson RG, Eccles MP, Steen IN, et al. A patient decision aid to support shared decision-making on anti-thrombotic treatment of patients with atrial fibrillation:randomised controlled trial. Qual Saf Health Care, 2007, 16(3):216-223.
8. Pablo A, Victor MM, Ivan S, et al. Values and preferences in oral anticoagulation in patients with atrial fibrillation, physicians' and patients' perspectives:protocol for a two-phase study. BMC Health Serv Res, 2008, 8:221.
9. Holbrook A, Labiris R, Goldsmith CH, et al. Influence of decision aids on patient preferences for anticoagulant therapy:a randomized trial. CMAJ, 2007, 176(11):1583-1587.
10. Gage BF, Cardinalli AB, Owens DK. Cost-effectiveness of preference-based antithrombotic therapy for patients with nonvalvular atrial fibrillation. Stroke, 1998, 29(6):1083-1091.
11. Thomson RG, Eccles MP, Steen IN, et al. A patient decision aid to support shared decision-making on anti-thrombotic treatment of patients with atrial fibrillation:randomised controlled trial. Qual Saf Health Care, 2007, 16(3):216-223.
12. Howitt A, Armstrong D. Implementing evidence based medicine in general practice:audit and qualitative study of antithrombotic treatment for atrial fibrillation. BMJ, 1999, 318(7194):1324-1327.
13. Locadia M, Stalmeier PF, Oort FJ, et al. A comparison of 3 valuation methods for temporary health states in patients treated with oral anticoagulants. Med Decis Making, 2004, 24(6):625-633.
14. Prins MH, Guillemin I, Gilet H, et al. Scoring and psychometric validation of the Perception of Anticoagulant Treatment Questionnaire (PACT-Q). Health Qual Life Outcomes, 2009, 7:30.
15. Lenert LA, Soetikno RM. Automated computer interviews to elicit utilities:potential applications in the treatment of deep venous thrombosis. J Am Med Inform Assoc, 1997, 4(1):49-56.
16. Alonso-Coello P, Montori VM, Solà I, et al. Values and preferences in oral anticoagulation in patients with atrial fibrillation, physicians' and patients' perspectives:protocol for a two-phase study. BMC Health Serv Res, 2008, 8:21.
17. 伍红艳. 健康效用值测量研究. 沈阳:沈阳药科大学, 2012.
18. 邢文荣, 邵元福, 陈盛新, 等. 健康效用值及其测量方法的选择. 药物流行病学杂志, 1999, 8(4):234-237.
19. Man-Son-Hing M, Laupacis A, O'Connor AM, et al. Stroke Prevention in Atrial Fibrillation Investigators:A patient decision aid regarding antithrombotic therapy for stroke prevention in atrial fi brillation:a randomized controlled trial. JAMA, 1999, 282(8):737-743.
20. O'Meara JJ Ⅲ, McNutt RA, Evans AT, et al. A decision analysis of streptokinase plus heparin as compared with heparin alone for deep-vein thrombosis. N Engl J Med, 1994, 330(26):1864-1869.
21. Bergus GR, Levin IP, Elstein AS. Presenting risks and benefits to patients. J Gen Intern Med, 2002, 17(8):612-617.
22. Man-Son-Hing M, Laupacis A, O'Connor AM, et al. Patient preference-based treatment thresholds and recommendations:a comparison of decision analytic modeling with the probability-tradeoff technique. Med Decis Making, 2000, 20(4):394-403.
23. Stanek EJ, Cheng JW, Peeples PJ, et al. Patient preferences for thrombolytic therapy in acute myocardial infarction. Med Decis Making, 1997, 17(4):464-471.
24. Available at:http://xueke.njucm.edu.cn/ShowNews.aspx?N_Id=69&TypeNum=-202&NewsType=-202.

Chinese Journal of Evidence-Based Medicine

Method of Patient Values and Preferences Research in Development of Clinical Practice Guidelines

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