Objective To compare quality of life for HIV infected people or AIDS patients and their family members of noninfected people in two counties (Zizhong and Zhaojue) with high AIDS morbidity and high HIV infective rates. Methods The quality of life for HIV infected people or AIDS patients and 162 of their family members and 97 people noninfected HIV/AIDS was measured by a questionnaire containing the generic quality of life inventory 74 (GQOLI-74) and the social support scale (SSS). Data were analyzed with SPSS. Results Total GQOLI-74 scores and each of the four dimensionality scores were significantly lower for HIV/AIDS people and their family members compared with noninfected people (total score for HIV/AIDS people 52.20 [9.41]; family members 60.46 [11.92]; noninfected people 66.36 [8.90] (Plt;0.01)). Scores for each of the disease status (physical function, psychological function, social function and material status) were all lower compared with noninfected people (all comparisons Plt;0.01). GQOLI-74 scores of HIV/AIDS people were significantly correlated with disease status and social support, but age, education level and substance abuse did not show significantly correlation. Conclusions The quality of life for HIV infected people or AIDS patients and their families is significantly lower than the general population, and this is particularly related to the severity of their disease and lack of social support.
目的 总结同理心在冠心病重症监护室（CCU）患者家属沟通中的应用及效果。 方法 选择2010年4月－5月入住CCU的患者100例，按入院先后顺序前50例设定为对照组，后50例设定为观察组；对照组采用传统常规方法与患者家属进行沟通，观察组应用同理心理念与患者家属沟通。观察两组患者家属在非探视时间到访次数、纠纷次数和CCU护理工作满意度情况。 结果 观察组患者家属较对照组在非探视时间到访次数、纠纷发生次数少，而满意度较对照组高，两组比较差异有统计学意义（P＜0.05）。 结论 应用同理心与CCU患者家属进行沟通，可增加医患间的理解和信任，减少非探视时间内家属到访次数，有利于维护医院正常的工作秩序，同时减少纠纷的发生，提高了护理服务满意度。
【摘要】 目的 探讨类风湿关节炎患者家属的健康教育需求及获得健康教育的途径。 方法 2007年6月-2009年5月，我科健康教育小组采用问卷调查法对96名类风湿关节炎患者家属进行健康教育需求调查，调查内容包括家属对类风湿疾病相关知识的了解程度、健康教育需求及获得知识的途径。 结果 本组患者家属普遍对类风湿关节炎的护理知识认识不够，最希望了解类风湿关节炎药物治疗、功能锻炼、饮食及心理指导的相关知识；电视、广播等媒体的宣传和电话咨询是其获得类风湿关节炎疾病相关知识的主要途径；对获得健康教育途径的选择具有多样性。 结论 类风湿关节炎患者家属普遍缺乏类风湿关节炎相关护理知识，开展多种形式的健康教育是完全必要的。【Abstract】 Objective To investigate the requirement and paths of health education on the family members of the patients with rheumatoid arthritis. Methods From June 2007 to May 2009, family members of 96 patients with rheumatoid arthritis were investigated with questionnaire. The questions included the knowledge of rheumatoid arthritis, health education requirement and the path to obtain the knowledge. Results The family members of the patients knew a few of the nursing knowledge of rheumatoid arthritis. They wanted to know about the medication for rheumatoid arthritis, functional practice, diet and psychological instruction. The paths of obtaining the knowledge were various. Conclusion The family members of the patients with rheumatoid arthritis lack the knowledge of nursing rheumatoid arthritis; it is necessary to give the health education to the family members in various ways.
ObjectiveTo explore the effect of spiritual care on improving the psychological stress levels of relatives of patients with terminal cancer. MethodsDuring January 2013 and January 2014, 220 relatives of patients with terminal cancer were selected. Convenience sampling method was adopted to select 100 relatives out of 190 who were agreed to be participated in the investigation, who were divided into the trial group and the control group with 50 in each according to the random alphabet method. The control group was given routine care and psychological counseling, and the trial group was given spiritual care intervention additionally. Before intervention, all of the individuals in both of the two groups should conduct the questionnaire of general demographic data, caregiver stress scale, fatigue rating scale, quality of life scale (QLS), social support scale (SSS), and relatives stress scale (RSS). ResultsAfter one month's intervention, caregiver stress scale score (52.14±4.75), fatigue rating score (76.75±8.69), RSS score (15.71±3.97), SSS score (22.59±2.22), the QLS score (66.9±7.5) in the trial group were significant better than those in the control group (P < 0.05). After intervention, all the scores in the trial group were significant better than whose before the intervention (P < 0.05). ConclusionFor the relatives of the patients with terminal cancer, spiritual care can reduce the occurrence rate of stress and fatigue, relieve the psychological stress level, and improve the social support and quality of life.